Self-management

Coping and support

Learning that your unborn twins have a major medical issue or life-threatening condition can be devastating. As a parent, you struggle with difficult decisions for your conjoined twins and the uncertain future. Outcomes can be difficult to determine, and conjoined twins who survive sometimes face tremendous obstacles.

Because conjoined twins are rare, it may be difficult to find supportive resources. Ask your health care team if medical social workers or counselors are available to help. Depending on your needs, ask for information on organizations that support parents who have children with significant physical conditions or who have lost children.

April 01, 2016
References
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  2. Pierro A, et al. Classification and clinical evaluation. Seminars in Pediatric Surgery. 2015;24:207.
  3. D'Antonio F, et al. Early pregnancy assessment in multiple pregnancies. Best Practice & Research Clinical Obstetrics and Gynaecology. 2014;28:201.
  4. Kiely EM, et al. Planning the operation. Seminars in Pediatric Surgery. 2015;24:221.
  5. Spitz L. Ethics in the management of conjoined twins. Seminars in Pediatric Surgery. 2015;24:263.
  6. Lockwood CJ, et al. Monoamniotic twin pregnancy. http://www.uptodate.com/home. Accessed March 9, 2016.
  7. Mandy GT. Neonatal complications, outcome, and management of multiple births. http://www.uptodate.com/home. Accessed March 9, 2016.
  8. Frequently asked questions. Pregnancy FAQ188. Multiple pregnancy. American College of Obstetricians and Gynecologists. https://www.acog.org/-/media/For-Patients/faq188.pdf?dmc=1&ts=20160311T1419075111. Accessed March 11, 2016.
  9. Wick MJ (expert opinion). Mayo Clinic, Rochester, Minn. March 14, 2016.