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Preparing for your appointment
By Mayo Clinic staffYou're likely to start by first seeing your family doctor or a general practitioner. However, in some cases when you call to set up an appointment, you may be referred immediately to a neurologist.
Because there may be a lot of ground to cover, it's a good idea to be well prepared for your appointment. Here's some information to help you get ready for your appointment, and what to expect from your doctor.
What you can do
- Be aware of any pre-appointment restrictions. At the time you make the appointment, ask if there's anything you need to do in advance, such as restrict your diet.
- Write down any symptoms you're experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment.
- Write down key personal information, including any major stresses or recent life changes.
- Make a list of all medications, as well as any vitamins or supplements, that you're taking.
- Take a family member or friend along, if possible. Sometimes it can be difficult to soak up all the information provided to you during an appointment. Someone who accompanies you may remember something that you missed or forgot.
- Write down questions to ask your doctor.
Preparing a list of questions ahead of time will help you make the most of your time together with your doctor. List your questions from most important to least important in case time runs out. For ataxia, some basic questions to ask your doctor include:
- What is likely causing my symptoms or condition?
- Other than the most likely cause, what are other possible causes for my symptoms or condition?
- What kinds of tests do I need?
- Is my condition likely temporary or chronic?
- What is the best course of action?
- Are there any devices that can help me with coordination?
- What are the alternatives to the primary approach that you're suggesting?
- I have these other health conditions. How can I best manage them together?
- Are there any restrictions that I need to follow?
- Should I see a specialist? What will that cost, and will my insurance cover seeing a specialist?
- Is there a generic alternative to the medicine you're prescribing me?
- Are there any brochures or other printed material that I can take home with me? What Web sites do you recommend?
- Can I participate in any research studies related to ataxia?
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may reserve time to go over any points you want to spend more time on. Your doctor may ask:
- When did you first begin experiencing symptoms?
- Have your symptoms been continuous, or occasional?
- How severe are your symptoms?
- What, if anything, seems to improve your symptoms?
- What, if anything, appears to worsen your symptoms?
- Do you have any family members who have had these types of symptoms?
- Do you use alcohol or drugs?
- Have you been exposed to any toxins?
What you can do in the meantime
Don't drink alcohol or take recreational drugs, which can make your ataxia worse.
- NINDS ataxias and cerebellar or spinocerebellar degeneration information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/ataxia/ataxia.htm. Accessed Dec. 29, 2008.
- NINDS Friedreich's ataxia information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/friedreichs_ataxia/friedreichs_ataxia.htm. Accessed Dec. 29, 2008.
- NINDS Ataxia telangiectasia information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/a_t/a-t.htm. Accessed Dec. 29, 2008.
- Opal P, et al. The spinocerebellar ataxias. http://www.uptodate.com/home/index.html. Accessed Jan. 5, 2009.
- NINDS paraneoplastic syndromes information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/paraneoplastic/paraneoplastic.htm. Accessed Dec. 29, 2008.
- Jen JC, et al. Primary episodic ataxias: Diagnosis, pathogenesis and treatment. Brain. 2007;130:2484. Accessed Dec. 15, 2008.
- Ataxia telangiectasia: Fact sheet. National Cancer Institute. http://www.cancer.gov/cancertopics/factsheet/ataxiaqa. Accessed Jan. 11, 2009.
- FA beginner's primer. Freidrich's Ataxia Research Alliance. http://www.curefa.org/primer.html. Accessed Jan. 11, 2009.
- Adult ataxia information for patients and caregivers. Worldwide education and awareness for movement disorders. http://www.wemove.org/ataxia/. Accessed Jan. 11, 2009.
