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Coping and support
By Mayo Clinic staffYou may be relieved to finally find an answer to what's been causing your signs and symptoms, but a diagnosis of a rare disease such as carcinoid syndrome can be stressful. As you develop your way of coping with a cancer diagnosis, talk with your health care team about how you feel and consider trying to:
- Find out all you can about carcinoid syndrome. Ask your doctor questions about your condition. Ask members of your health care team to recommend resources where you can get more information. Knowing about your condition may enable you to better participate in decisions about your care.
- Talk to other people with carcinoid syndrome. Support groups for people with carcinoid syndrome put you in touch with those who have faced the same challenges you are facing. Ask your doctor about groups in your area. Carcinoid syndrome is rare, though, so you may need to connect with people outside your immediate area.
- Take care of yourself. Do what you can to maintain a healthy lifestyle. Choose healthy meals with plenty of fruits and vegetables. When you feel up to it, work light exercise into your daily routine. Cut extra stress out of your life when possible. Get plenty of sleep so that you feel rested when you wake up. Take care of your body and mind so that you're better able to stick to your cancer treatment plan.
References
- A review of carcinoid cancer. Carcinoid Cancer Foundation. http://www.carcinoid.org/pcf/docs/review.html#SYN. Accessed April 10, 2010.
- How are gastrointestinal carcinoid tumors diagnosed? American Cancer Society. http://www.cancer.org/docroot/CRI/content/CRI_2_4_3X_How_is_gastrointestinal_carcinoid_tumors_diagnosed_14.asp?sitearea=. Accessed April 10, 2010.
- Carcinoid tumor. American Society of Clinical Oncology. http://www.cancer.net/patient/Cancer+Types/Carcinoid+Tumor?sectionTitle=Symptoms. Accessed April 10, 2010.
- Sitaraman SV, et al. Clinical features of the carcinoid syndrome. http://www.uptodate.com/home/index.html. Accessed April 12, 2010.
- Sitaraman SV, et al. Treatment of carcinoid tumors and the carcinoid syndrome. http://www.uptodate.com/home/index.html. Accessed April 12, 2010.
- Connolly HM. Carcinoid heart disease. http://www.uptodate.com/home/index.html. Accessed April 12, 2010.
- Ghevariya V, et al. Carcinoid tumors of the intestinal tract. Southern Medical Journal. 2009;102:1032.
- Bhattacharyya S, et al. Carcinoid heart disease. Circulation. 2007;116:2860.
- Moynihan TJ (expert opinion). Mayo Clinic, Rochester, Minn. April 19, 2010.
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