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Preparing for your appointment
By Mayo Clinic staffIf it's suspected that you have carcinoid tumors, you're likely to first see your primary care doctor. However, you may then be referred to a doctor who specializes in problems involving the gastrointestinal tract (gastroenterologist), a doctor who specializes in lung problems (pulmonologist) or a doctor who treats cancer (oncologist).
Because appointments can be brief, and because there's often a lot of ground to cover, it's a good idea to be well prepared. Here's some information to help you get ready, and what to expect from your doctor.
What you can do
- Be aware of any pre-appointment restrictions. At the time you make the appointment, be sure to ask if there's anything you need to do in advance, such as restrict your diet.
- Write down any symptoms you're experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment.
- Write down key personal information, including any major stresses or recent life changes.
- Make a list of all medications, as well as any vitamins or supplements, that you're taking.
- Take a family member or friend along. Sometimes it can be difficult to absorb all the information provided during an appointment. Someone who accompanies you may remember something that you missed or forgot.
- Write down questions to ask your doctor.
Your time with your doctor is limited, so preparing a list of questions can help you make the most of your time together. List your questions from most important to least important in case time runs out. Some basic questions to ask your doctor include:
- What is likely causing my symptoms?
- Are there any other possible causes for my symptoms?
- What kinds of tests do I need? Do these tests require any special preparation?
- What treatments are available and which do you recommend?
- What are the risks and side effects I can expect for each treatment?
- What's my prognosis if I undergo treatment?
- Will the treatment affect my ability to work or do normal daily activities?
- I have these other health conditions. How can I best manage these conditions together?
- Are there any brochures or other printed material that I can take with me? What websites do you recommend?
- How often do I need follow-up visits?
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may allow more time to cover points you want to address. Your doctor may ask:
- When did you first begin experiencing symptoms?
- Have your symptoms been continuous, or occasional?
- How severe are your symptoms?
- What, if anything, seems to improve your symptoms?
- What, if anything, appears to worsen your symptoms?
What you can do in the meantime
Avoid any activities that seem to worsen your signs and symptoms. If you're experiencing frequent skin flushing, avoid common triggers, such as stress, alcohol and intense exercise.
- Kulke MH. Clinical presentation and management of carcinoid tumors. Hematology/Oncology Clinics of North America. 2007;21:433.
- Pasieka JL. Carcinoid tumors. Surgical Clinics of North America. 2009;89:1123.
- Chang BB, et al. Neuroendocrine carcinoma. In: Kantarjian HM, et al. MD Anderson Manual of Medical Oncology. New York, N.Y.: McGraw Hill; 2006. http://www.accessmedicine.com/content.aspx?aID=2790810. Accessed Aug. 6, 2010.
- Lung carcinoid tumor. American Cancer Society. http://www.cancer.org/acs/groups/cid/documents/webcontent/003117-pdf.pdf. Accessed Aug. 6, 2010.
- Scherubel H, et al. Neuroendocrine tumors of the stomach (gastric carcinoids) are on the rise: Small tumors, small problems? Endoscopy. 2010;42:664.
- Sitaraman SV, et al. Diagnosis of the carcinoid syndrome and tumor localization. http://www.uptodate.com/home/index.html. Accessed Aug. 3, 2010.
- Jensen RT. Endocrine tumors of the gastrointestinal tract and pancreas. In: Fauci AS, et al. Harrison's Principles of Internal Medicine. 17th ed. New York, N.Y.: McGraw Hill; 2008. http://www.accessmedicine.com/content.aspx?aID=2886966. Accessed Aug. 6, 2010.
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