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Coping and support
By Mayo Clinic staffWhen a child is diagnosed with a disabling condition, the whole family faces new challenges. Here are a few tips for caring for your child and yourself:
- Foster your child's independence. Encourage any effort at independence, no matter how small. Just because you can do something faster or more easily doesn't mean you should.
- Be an advocate for your child. You are an important part of your child's health care team. Don't be afraid to speak out on your child's behalf or to ask tough questions of your physicians, therapists and teachers.
- Find support. A circle of support can make a big difference in helping you cope with cerebral palsy and its effects. As a parent, you may feel grief and guilt over your child's disability. Your doctor can help you locate support groups, organizations and counseling services in your community. Your child may benefit from family support programs, school programs and counseling.
References
- Cerebral palsy: Hope through research. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/cerebral_palsy/detail_cerebral_palsy.htm. Accessed Sept. 27, 2010.
- Evaluating and diagnosing the child with cerebral palsy. American Academy of Neurology. http://www.aan.com/practice/guideline/index.cfm?fuseaction=home.view&guideline=124. Accessed Sept. 27, 2010.
- Cerebral palsy. American Academy of Pediatrics. http://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Pages/Cerebral-Palsy.aspx. Accessed Sept. 28, 2010.
- Krigger KW. Cerebral palsy: An overview. American Family Physician. 2006;73:91.
- Ashwal S, et al. Practice parameter: Diagnostic assessment of the child with cerebral palsy: Report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology. 2004;62:851.
- Cerebral palsy: Drug treatments for spasticity in children and adolescents. American Academy of Neurology. http://www.aan.com/practice/guideline/index.cfm?fuseaction=home.view&guideline=389. Accessed Sept. 27, 2010.
- Delgado MR, et al. Practice parameter: Pharmacologic treatment of spasticity in children and adolescents with cerebral palsy (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology. 2010;74:336.
- Information for Healthcare Professionals: OnabotulinumtoxinA (marketed as Botox/Botox Cosmetic), abobotulinumtoxinA (marketed as Dysport) and rimabotulinumtoxinB (marketed as Myobloc). U.S. Food and Drug Administration. http://www.fda.gov/Drugs/DrugSafety/PostmarketDrugSafetyInformationforPatientsandProviders/DrugSafetyInformationforHeathcareProfessionals/ucm174949.htm. Accessed Sept. 30, 2010.
- Patterson MC (expert opinion). Mayo Clinic, Rochester, Minn. Nov. 9, 2010.
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