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Preparing for your appointment

By Mayo Clinic staff

Living with cancer newsletter

Subscribe to our Living with cancer newsletter to stay up to date on cancer topics.

If you're currently undergoing cancer treatment, talk to your oncologist about your signs and symptoms. If you've completed treatment, you might start by making an appointment with your family doctor or a general practitioner. In some cases, you may be referred to a professional who specializes in helping people cope with memory difficulties (neuropsychologist).

Because appointments can be brief, and because there's often a lot of ground to cover, it's a good idea to be well prepared. Here's some information to help you get ready and what to expect from your doctor.

What you can do

  • Keep a journal of your memory lapses. Describe the situations in which you experience memory problems. Note what you were doing and what type of difficulty you experienced.
  • Make a list of all medications, as well as any vitamins or supplements, that you're taking.
  • Take a family member or friend along or bring a recorder. Sometimes it can be difficult to absorb all the information provided during an appointment. Someone who accompanies you may remember something that you missed or forgot. Record the conversation with your doctor so you can listen to it later.
  • Write down questions to ask your doctor.

Your time with your doctor is limited, so preparing a list of questions can help you make the most of your visit. List your questions from most important to least important in case time runs out. For chemo brain, some basic questions to ask your doctor include:

  • What is likely causing my symptoms?
  • How long do symptoms typically last?
  • What kinds of tests can help determine whether the symptoms I'm experiencing are caused by cancer treatment?
  • Should I see a neuropsychologist? What will that cost, and will my insurance cover it?
  • What is the best treatment for my symptoms?
  • Are there things I can do on my own, in addition to the treatment you're suggesting, to help improve my memory problems?
  • Are there any brochures or other printed material that I can take home? What websites do you recommend?
  • Should I plan for a follow-up visit?

In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment any time you don't understand something.

What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may allow more time later to cover points you want to address. Your doctor may ask:

  • When did you first begin experiencing these symptoms?
  • Have your symptoms been continuous or occasional?
  • How do your symptoms affect your everyday life?
  • What, if anything, seems to improve your symptoms?
  • What, if anything, appears to worsen your symptoms?

What you can do in the meantime
Track your symptoms in a journal. Note the time of day and the situations when memory problems occur. Patterns in your symptoms may help your doctor better understand what could be causing your symptoms and the best way to help you cope.

References
  1. Vardy J, et al. Cognitive function after chemotherapy in adults with solid tumors. Critical Reviews in Oncology/Hematology. 2007;63:183.
  2. Vardy J, et al. Evaluation of cognitive function associated with chemotherapy: A review of published studies and recommendations for future research. Journal of Clinical Oncology. 2007;25:2455.
  3. Definition of a neuropsychologist. National Academy of Neuropsychology. http://www.nanonline.org/NAN/Files/PAIC/PDFs/NANPositionDefNeuro.pdf. Accessed Aug. 27, 2010.
  4. Vardy J, et al. Cancer and cancer-therapy related cognitive dysfunction: An international perspective from the Venice cognitive workshop. Annals of Oncology. 2008;19:623.
  5. Taillibert S, et al. Chemobrain: Is systemic chemotherapy neurotoxic? Current Opinion in Oncology. 2007;19:623.
  6. Hurria A, et al. Renaming "chemobrain." Cancer Investigation. 2007;25:373.
  7. Improving your concentration: Three key steps. CancerCare. http://www.cancercare.org/pdf/fact_sheets/fs_chemobrain_concentration.pdf. Accessed Aug. 30, 2010.
  8. Combating chemobrain: Keeping your memory sharp. CancerCare. http://www.cancercare.org/pdf/fact_sheets/fs_chemobrain_memory.pdf. Accessed Aug. 30, 2010.
  9. Cognitive problems. Cancer.Net. http://www.cancer.net/patient/All+About+Cancer/Treating+Cancer/Managing+Side+Effects/Cognitive+Problems. Accessed Aug. 30, 2010.
  10. Ginkgo. Natural Medicines Comprehensive Database. http://www.naturaldatabase.com. Accessed Aug. 30, 2010.
  11. Vitamin E. Natural Medicines Comprehensive Database. http://www.naturaldatabase.com. Accessed Aug. 30, 2010.
  12. Brown PD, et al. Neurocognitive effects. In: DeVita TJ Jr, et al. DeVita, Hellman, and Rosenberg's Cancer: Principles & Practice of Oncology. 8th ed. Philadelphia, Pa.: Wolters Kluwer Health Lippincott Williams & Wilkins; 2008:2751.
  13. Ganz PA. Cancer Survivorship: Today and Tomorrow. New York, N.Y.: Springer; 2007:59.
  14. Ferguson RJ, et al. Management of chemotherapy-related cognitive dysfunction. In: Feuerstein M. Handbook of Cancer Survivorship. New York, N.Y.: Springer; 2007:287.
  15. Chang G, et al. Mental status changes after hematopoietic stem cell transplantation. Cancer. 2009;115:4625.
DS01109 Oct. 9, 2010

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