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Coping and support
By Mayo Clinic staffChurg-Strauss syndrome is a serious and sometimes devastating disease. Even when it's in remission, you may worry about the possibility of recurrence or about long-term damage to your heart, lungs and nerves. Here are some suggestions for coping with the disease:
- Educate yourself about Churg-Strauss syndrome. The more you know, the better prepared you may be to deal with complications or recurrences. Besides talking to your doctor, you may want to talk to a counselor or medical social worker. Or you may find it helpful to talk to other people with Churg-Strauss syndrome.
- Maintain a support system. Although family and friends can help tremendously, you sometimes may find the understanding and advice of other people with Churg-Strauss syndrome especially helpful. Your doctor or a medical social worker may be able to put you in touch with a support group. Or you can look for a real or virtual support group through the Churg-Strauss Syndrome Association.
References
- Baldini C, et al. Clinical manifestations and treatment of Churg-Strauss syndrome. Rheumatic Disease Clinics of North America. 2010;36:527.
- Lee K, et al. Churg-Strauss syndrome. In: Ferri FF. Ferri's Clinical Advisor 2011: Instant Diagnosis and Treatment. Philadelphia, Pa.: Mosby Elsevier; 2011. http://www.mdconsult.com/books/page.do?eid=4-u1.0-B978-0-323-05610-6..00012-3--sc0165&isbn=978-0-323-05610-6&sid=1068342455&type=bookPage§ionEid=4-u1.0-B978-0-323-05610-6..00012-3--sc0165&uniqId=222493850-3#4-u1.0-B978-0-323-05610-6..00012-3--sc0165. Accessed Oct. 12, 2010.
- Sneller MC, et al. Churg-Strauss syndrome. In: Adkinson NF, et al. Middleton's Allergy: Principles and Practice. 7th ed. St. Louis, Mo.: Mosby; 2008. http://www.mdconsult.com/books/page.do?eid=4-u1.0-B978-0-323-05659-5..00054-1--cesec15&isbn=978-0-323-05659-5&sid=1068342455&type=bookPage§ionEid=4-u1.0-B978-0-323-05659-5..00054-1--cesec15&uniqId=222493850-3#4-u1.0-B978-0-323-05659-5..00054-1--cesec15. Accessed Oct. 12, 2010.
- King TE Jr. Clinical features and diagnosis of Churg-Strauss syndrome (allergic granulomatosis and angiitis). http://www.uptodate.com/home/index.html. Accessed Oct. 12, 2010.
- King TE Jr. Epidemiology, pathogenesis, and pathology of Churg-Strauss syndrome (allergic granulomatosis and angiitis). http://www.uptodate.com/home/index.html. Accessed Oct. 12, 2010.
- King TE Jr. Treatment and prognosis of Churg-Strauss syndrome (allergic granulomatosis and angiitis). http://www.uptodate.com/home/index.html. Accessed Oct. 12, 2010.
- Glucocorticoid-induced osteoporosis. American College of Rheumatology. http://www.rheumatology.org/practice/clinical/patients/diseases_and_conditions/gi-osteoporosis.asp. Accessed Oct. 12, 2010.
- Cannon GW. Immunosuppressing drugs including corticosteroids. In: Goldman L, et al. Cecil Medicine. 23rd ed. Philadelphia, Pa.: Saunders Elsevier; 2007. http://www.mdconsult.com/das/book/body/225194068-7/1078137300/1492/151.html#4-u1.0-B978-1-4160-2805-5..50038-0_1384. Accessed Nov. 2, 2010.
- Dietary supplement fact sheet: Vitamin D. National Institutes of Health. http://ods.od.nih.gov/factsheets/vitamind.asp. Accessed Oct. 12, 2010.
- Rosenow E (expert opinion). Mayo Clinic, Rochester, Minn. Oct. 19, 2010.
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