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Coping and support
By Mayo Clinic staffChurg-Strauss is a serious and sometimes devastating disease. Even when it's in remission, you may worry about the possibility of recurrence or about long-term damage to your heart, lungs and nerves. Here are some suggestions for coping with the disease:
- Educate yourself about Churg-Strauss syndrome. The more you know, the better prepared you'll be to deal with complications or recurrences. Besides talking to your doctor, you may want to talk to a counselor or medical social worker. Or you may find it helpful to talk to other people with Churg-Strauss syndrome.
- Maintain a strong support system. Although family and friends can help tremendously, you sometimes may find the understanding and in-the-trenches advice of other people with Churg-Strauss syndrome especially helpful. Your doctor or a medical social worker may be able to put you in touch with a support group. Or you can look for a real or virtual support group through the Churg-Strauss Syndrome Association.
References
- What is Churg Strauss syndrome? Churg Strauss Syndrome Association. http://www.cssassociation.org/about_the_syndrome.asp. Accessed Aug. 20, 2008.
- King TE. Churg-Strauss syndrome (allergic granulomatosis and angiitis). http://www.uptodate.com/home/index. Accessed Aug. 20, 2008.
- Churg Strauss syndrome. Vasculitis Foundation. http://www.vasculitisfoundation.org/churgstrausssyndrome. Accessed Aug. 20, 2008.
- Hellmich B, et al. Update on the pathogenesis of Churg-Strauss syndrome. Clinical and Experimental Rheumatology. 2003;21(6)(suppl):S69-S77.
- Lilly CM, et al. Asthma therapies and Churg-Strauss syndrome. The Journal of Allergy and Clinical Immunology. 2002;109(1):S1-S19.
- Weschler ME, et al. Churg-Strauss syndrome in patients receiving montelukast as treatment for asthma. Chest. 2000;117(3):708-713.
- Hauser T, et al. The leukotriene receptor antagonist montelukast and the risk of Churg-Strauss syndrome: A case-crossover study. Thorax. 2008;63:677-682.
- Tsurikisawa N, et al. Treatment of Churg-Strauss syndrome with high-dose intravenous immunoglobulin. Annals of Allergy, Asthma & Immunology. 2004;92(1):80-87.
