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With Mayo Clinic nutritionists Jennifer Nelson, M.S., R.D. and Katherine Zeratsky, R.D.
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July 26, 2008
Helping a loved one with special dietary needs
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By Jennifer Nelson, M.S., R.D. and Katherine Zeratsky, R.D.

I was just looking through a recent issue of the journal "Nutrition in Clinical Practice" and came across a review article on "Diet and Lifestyle Modifications in the Management of Gastroesophageal Reflux Disease" — or GERD. The article listed some statistics:

  • GERD is the most common gastrointestinal related diagnosis given by U.S. physicians.
  • 44 percent of the population has bothersome symptoms at least once monthly.
  • 17 percent have weekly occurrence, 7 percent are bothered daily.
  • In 2004 medication to treat GERD was among the top 5 selling drugs — costing in excess of $10 billion dollars.

Long-standing or inadequately treated GERD can lead to adenocarcinoma among other conditions that can affect swallowing — pretty serious.

Why my interest? My husband has GERD. But rather than go into detail about what this condition is, I thought I'd approach it from the perspective of a spouse. (See the links below for a full description and a neat video.)

About 10 years ago, my husband would suddenly sit upright in bed in the middle of the night gasping. Since I began my practice in gastroenterology we quickly determined that it was probably acid reflux and got over-the-counter antacids. We also implemented several lifestyle changes such as smaller meals and avoiding foods he knew were aggravating like garlic and caffeine. We don't smoke, and he's skinny so his weight is not an issue.

Some time later, we were having dinner (complete with guests) and he again gasped, clutched his chest (heart attack?) and off to the ER we went. He was diagnosed with esophageal stricture with spasms (due to reflux) — a very painful condition that mimics a heart attack. OK, time to get really serious. He had a procedure that stretched his narrowed esophagus, and was put on stronger prescription medication. It was a certainty that we needed further lifestyle changes.

We've found we need to eat early — no later than 6:30 pm in order to control symptoms so we can get to bed at a decent hour. We get off work at 5 p.m. So things get really hectic in order to get dinner served and eaten. We have also found that our evening glass of wine needed to be eliminated. Our friends have learned that our dinner parties start at 5 and end early. For elevating the head of the bed we tried the typical 6-inch blocks you can get at the home improvement center. Not good enough. Finally we got an 8-inch by 6-inch railroad type tie. He also supplements this with a foam wedge that elevates his upper torso about another 4 inches for a total of 1 foot. Perfect! We've also implemented all of the other recommended lifestyle changes listed in the links below.

My point is that when medical problems occur, they impact the lives of family members and friends. My husband appreciates that I've improved his quality of life by changing many things in our diet and being a partner in his care. (He also appreciates that I must put up with clinging to the head of the bed to keep from sliding down and off!)

Seriously, I fully recognize that there are other medical conditions that are considered more grave. These include cancer, heart disease, diabetes, trauma and end of life maladies that require many changes in diet and life style. But common conditions like GERD are also important and they need the help of a spouse, family member or friend. (My husband also has celiac disease — but that will be another blog.)

I'd like to hear from you if you have a spouse, family member or friend with special dietary needs and how you help make their lives a bit better.

14 comments posted
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January 5, 2009 2:08 p.m.
I got the results of my 1st A1C test and it was 6%, which my Dr. said was excellent. My cholesterol dropped from 202 to 139. I have been walking 45 minutes every day and have now lost 21 lbs., with 20 more to go. Counting carbs is not difficult and has really helped me to be alot healthier. I do not really feel deprived, if I want a piece of candy I eat it as long as my numbers are ok. The main thing I miss is not being able to eat much in the way of beans and pasta, they are just loaded with carbs. Thank heaven I do not have to go on meds. I just hope I can keep this up and avoid medication.
- Sharon
January 3, 2009 6:09 p.m.
My husband had his esophagus removed because of Barrett's. We are still trying to fiqure out after 2 years the what and what not's. He has dumping syndrome. He still gets acid indigestion. He sleeps sitting up. Is there anything I can suggest to him?
- Barbara
December 18, 2008 6:20 p.m.
I was just diagnosed with signs of Barretts esophagus. I have been going to a research clinic nmed West Wind'r research. They are now giving me medicine to stop the Gerd. And serious talks on prevention and understanding of my condition. I'm going in tomorrow for a second Endoscopy to see if their treatment has helped my diagnoses. Although they have informed me a must seek medical help at the end of the study. This treatment alone has given me a time period to adjust my eating habits over the course of their treatments. By the way, because of their treatment, I haven't had heart burn for 4 months. I love these people.
- Jim
November 11, 2008 8:29 a.m.
My husband was just diagnosed with Barretts esophagus. Does anyone have suggestions about menus, recipes, web sites that will help me plan meals? Like Lucille, I want to look forward and do positive things to help, and make life better for my husband. Maybe there could be another blog for posting symptoms and experiences. Thank you!
- Jane
October 13, 2008 1:32 p.m.
I really found your article helpful. I did not get to sleep until almost 4 am this morning. I am on meds and have a foam wedge, going to try railroad tie under bed. I am thin and I am very careful about my diet. I think the railroad tie may work! Thank u
- Barbara
September 20, 2008 9:25 p.m.
thank you so much. Your experience seems to mirror my husbands except he does not have celiac disease. Your comment about more serious diseases is true but this is still stressful and hard for us. We are learning slowly what helps but reading of other people doing the same thing is encouraging please keep it up Thank you
- liz
September 7, 2008 6:58 a.m.
I expected details about diet for GERD, not a personal history.
- lucille helman
August 23, 2008 9:44 p.m.
After suffering acid reflux for years, and recently, on a daily basis, usually in the middle of the night, I started reading up on the topic. I now am on the first day of a 14-day treatment with over-the-counter omeprazole (one pill, 20 mg per day, first thing in the morning) and am altering my lifestyle. I feel much better already. For dinner this evening, I had raisin bran, skim milk and a banana. I plan to lose weight. I am biking two miles to college each day, where I teach journalism. I was glad to see one chart that said beer is an accepted beverage when avoiding acid reflux. Cool. I can still drink modest amounts of the suds. I was sad to see I should cut back on coffee and tea. About six months ago, I had an acid reflux incident, while sleeping, in which I inhaled acidic liquids and woke up choking. Within an hour, I had chills and violent shaking. My lungs were having a pnemonia reaction to the liquids. The chills lasted for over an hour. It was awful. My temp was 102.5. I don't want to experience that again. My doctor, in the morning, found it to be a very interesting case. He prescribed an antibiotic and told me to be careful about eating heavy meals just before bed. That's it for now. Cheers!
- Alan, in Kansas
August 13, 2008 5:00 p.m.
My fiance has high blood pressure and GERD. I have had a healthful, mostly vegetarian diet for years, and when we got together I started cooking for him. In the first six months he dropped almost 40 pounds and was able to stop taking one of his two blood pressure medications, and reduced Nexium to every other day. Simply reducing the amount of red meat and fast food he was eating made a huge difference! I feel very blessed to be with someone who has been willing to embrace these changes and try new and different foods. I think that support between partners who want to make healthful lifestyle changes is critical to success. If you do not have that support at home - as some of the other posters have indicated - try joining a support group (I know that there are celiac support groups in my area, for example).
- Glaphre
August 8, 2008 1:56 p.m.
I have a hiatal Hernia, GERD, and Barretts Esophagus. Three nights ago, I woke up in the middle of the night gasping for air and chocking. This has happened before, but not as bad. For the last month or so, I feel like a popcorn kernel has been stuck in my throat, I can't keep anything down, the bile comes up my nose, the smell of food is enough to send me running to the bathroom. I'm starting to lose weight (ok, that's not exactly a bad thing, just not the way I want to do it.) Yesterday I was told I need the surgery and I'm very scared. My husband just doesn't seem to be very concerned; he still thinks its just heart burn. Since he's never been sick a day in his life and is extremely healthy, I don't get much sympathy and understanding from him. What foods can I eat? It seems everything comes up these days. Banana pudding is about the only thing that stays down. Does anyone have more information about the recovery time for the surgery? Will they be able to do it through my throat without opening me up? Hope to hear from anyone soon.
- Yvonne
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