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  • July 21, 2010

    How has cancer changed you?

    By Sheryl M. Ness, R.N.

129 comments posted

How has life changed for you as a cancer survivor? So many times, I hear someone say "my life is so different now," or "cancer changes you." In exploring this idea a bit more, it's not so much about the physical changes that take place, but also the emotional and spiritual changes.

I remember talking with a woman who had just had breast cancer surgery. She was in her early 40's, with a husband and teenage daughters. She wasn't so concerned about the physical changes that she had undergone, but mentioned how her family relationships had changed. She said that she was closer than ever with her family. She was very open with her daughters about everything that she was experiencing. She was honest about her feelings and talked with them about genetic testing and planning for their future as well. They had a great way of giving strength to each other through open and honest communication.

Many times, religious faith is strengthened, family members take on new roles, and friendships bring new meaning. Personal perspectives, priorities and habits can all be a bit different than before your diagnosis. These changes can be positive or negative and present new challenges that you haven't had to deal with before.

Please write in and share with others how cancer has changed you.

129 comments posted

blog index
  • April 29, 2012 10:10 p.m.

    Cancer is the ultimate equalizer: men, women, young, old, around the corner or across the country we are all the same. We are not encumbered by race, creed, ethnicity or political persuasion because we have come to understand that we are all the same, sharing the same pain and fear of the unknown. If there are no support groups in your area, think about how you might be able to start something yourself. I’m not sure how you would begin but maybe start by contacting the American Cancer Society for guidance, or your local hospital administrator. Even if the group is small, you’ll each have someone who understands what you’re going through. We all deserve compassion and validation and who better to give us what we need. Sheryl, perhaps you can offer some advice here.

    - Sheila

  • April 29, 2012 10:02 p.m.

    Lisa (July 22, 2010) - Your story reminded me of a school friend of my daughter who ended up living out of her car while undergoing extremely painful treatments, and the unpleasant side effects, while her family refused to even acknowledge her situation. Fortunately, my daughter realized what was going on and sent her hotel money until her treatments were finished; then moved her across country to provide a safe, healthy environment during recovery. Remember: we are not failures because we got cancer. Amazingly, even in this day and age, there is a stigma surrounding this disease. Some people are still afraid that exposure will somehow put them at risk. Perhaps it’s their own fear that makes them view us as weak, when we are anything but. I'm hopeful that your life is back on-track and you've found support in the many good people that are out there.

    - Sheila

  • April 29, 2012 9:37 p.m.

    Linda - I'm only now reading your post from last year and hope more than anything that you’ve been able to find some solutions for yourself and your family. There are too many stories like yours but it’s often difficult to make suggestions because where we live and what facilities/doctors are available is different for each of us. A free publication I picked up the last time I visited my oncologist “Caring4Cancer” is also available as a website http://www.caring4cancer.com and offers so much excellent information. One of the areas they discuss is financial support. There are many pharmaceutical companies that can assist with providing drugs at little or no cost depending on your circumstances. No one should go without treatment and there are resources the cancer patient.

    - Sheila

  • April 5, 2012 1:06 p.m.

    so far not for the better that i can see. i am still so angry. the first two years i appeared to sail through but after that the reality hit me. the boob job had really failed. boyfriend left. job was never coming back and my hair was falling out for the second time. i also had a brain inoperable brain aneurysm. i am going into therapy in hopes for a positive change but it doesn't always turn out like a bed of roses and i doubt i am alone in that fact.

    - Karin

  • February 21, 2012 12:07 p.m.

    I was diagnosed with DCIS in my right breast on my 4th wedding anniversary and told the entire breast was full of cancer and I needed a full right mastectomy on my 48th birthday! Wow, did it change my life! My husband and 20 yr old son were my biggest supporters, but I had fantastic friends too! I had a year of chemo and radiation...missing work, sick as a dog, hurting to walk...the Kojack look became me too! I am a very sarcastic person so I cracked jokes thru it all. My hubby had all my friends and his motorcycle club in the lobby to congratulate me when I came out after my last radiation, then we went to lunch. I couldn't have done it without him. I spent last year in reconstructive surgery which was awful but I wanted it and it was worth it for the end result. I'm closer to my family and close friends. I thank the powers that be for them. I'm a volunteer for the American Cancer Society and Relay for Life now! I lost some wonderful friends along the way and I'm still in touch with some that are fighting the good fight. Chemo and early menopause have affected my memory so much that I can hardly read anymore, words fail me, my memory isn't there anymore...I don't feel like I'm myself; I have insomnia and hot flashes...BUT I'M ALIVE AND IN REMISSION. Cancer picked on the wrong b*tch!!!

    - Jenyfer

  • November 15, 2011 6:11 p.m.

    I am now listed as a survivor. My cancer has been in remission for 5 years. Reading the blogs and comments here has reinvigorated me to get back into shape. I was 39 years old when cancer struck, and I kept my condition hidden from my family and work partners. No one noticed until I started missing work and our Major demanded a Doctor's note as to why I was taking so much time off that anyone found out. After that, I found I had the full support of my family, friends, and work partners that I could go through my chemo and radiation whole heartedy. I hope and pray that anyone wanting information on coping with cancer will visit this site and take inspiration from it. I know I have, as I had Colon, Upper GI, and another tumor between my stomach and lung during my treatments. I am a 20 year Police Officer, but more than that, I am a survivor.

    - Colin

  • October 2, 2011 8:49 a.m.

    i have invasive lobular carcinoma and a very abusive family of origin. i have never married and live alone with two cats. the last thing on god's earth i want is a bunch of jeering fanatics in some church or other cheer leading me on as if i am in some sort of olympic contest to prove that i " can handle whatever god throws at me and what ho how are things today .. jollying along with the merry old cancer are we god really cares you know and by the way i am expecting my seventh just stopped breastfeeding the last one pregnant again you knwo ho ho is not exactly what i want to hear when my life expectancy is now forty two months .. please realise that other people don't want, have not asked for and would feel utterly revolted by your grinning mania when they are literally on their death bed. thank you

    - julie

  • June 3, 2011 1:42 p.m.

    My family connections have definitely become closer. My husband is my rock. Some folks are uneasy about talking about my not so good prognosis. My husband and I can discuss it all. I will say that although I still have a spiritual connection to nature, I've pretty much dismissed the idea of an omnipotent god. I was taught that God keeps his eyes even on the sparrows. Well,, the birds around my house hit the windows and die on a regular basis. I see good people suffer and can't believe this god anymore. Some friends are now closer yet some have drifted and I understand that.

    - Cheryl

  • April 7, 2011 7:32 p.m.

    2 Years ago my Husband lost his Job & our insurance. In 2010 I got Triple Negative Breast Cancer! How Brutal. I was 19 & Pregnant when I found my Bio mom dying from it. She was 46. She never shared if I had family or a Dad. Now its my turn! And I'm near her age. I'm longtime Married with Daughters & grand babies! How Hard it is to do this SO poor. And down on our luck! No money, decent car, gas or meds for needful help or relief! So Brutal! I'm alive. With no quality of life! Those 3 Brutal Chemo Caused me so many hardships and overwhelming pain! From head to toe! You Think having Bad teeth before was hard!? Worse so Now! Migraines for now 32 years! I can't trust my body. I can't trust my hands, feet, legs, knees Etc.. Horrible nueporgtyh. Prickly Hot flashes like dozens of pins & needles poke me all at once.No sleep. No decent food. And soon my Husband's unemployment will run out. We'll have Zero income! I feel like a burden and am hopeless! Is there any Life, management or healing? I'm not finding or feeling any.. Does it get any better!? I also had 35 days of radiation. Sore Ribs that stick out and Hurt! And my Chemo port that hardly worked. It Throbs there Every since. During this my Surgeon Quit! To run for State Senate. My main Dr. Quit & so did the radiologist. Pure Sadness, pain and endless problems Galore! I'm Alive but I did it for my Dear husband! I hope it can get Better! But How?Anyone do it without money & needful Meds.? I'm on Nothing!

    - Linda

  • February 11, 2011 5:53 p.m.

    I've had cancer three times, starting in 1998. The first one was thymoma, the thymus gland next to the heart and lungs. It had spread, stage III and left me somewhat debilitated. After a 50% chance of survival, all the chemo and radiation, I survived and raised my children. Then 7 years later I got breast cancer. So I had a lumpectomy and went through radiation again, which was not so bad. Then I got thymoma again recurring in my lung. The first dr said that she could just buy me time with chemo, but I went to the only dr in the US who specializes in thymoma, who I had gone to 11 years earlier and he and his surgeon did chemo and surgery to remove the lung and I'm still here. They had to take part of my heart, because it had spread onto it, but it still works. I'm telling you all this because I was really affected mentally by all the chemo. After the last treatment, I sat on the couch for 8 months. I had no motivation, energy, focus, couldn't plan or complete anything. I had chemo brain, it was foggy and my memory was impaired. I went to a dr who does brain-imaging and had a full workup. The scans show that I have chemo-induced ADD. There is visible damage on the scans where ADD shows up. I never used to have it, but now I do. With that information, I now take an ADD medication which has made all the difference. I feel human again, I feel like myself. My brain works, I can get things done. I just want people to know that this happens.

    - Cynthia

  • January 23, 2011 6:51 p.m.

    I am a 2 year survivor of HER2 positive invasive ductal carcinoma (breast ca.). I had neo-adjuvant chemo, 1 year of the life saving Herceptin, surgery and 6 weeks of radiation. The diagnosis was a total shock since there is nearly no cancer and no known breast cancer in my family and I was diagnosed at 36. My life is very different now. I have always found joy and been grateful for the simple things in life, but even more so now. I am a bit more selective in the company I keep. I choose to sorround myself with positive energy. My outlook has been for the most part positive but lately I struggle. My family relationships are damaged, with the exception of one brother- who is genuine in his support and love. My parents respond by not dealing with my diagnosis/treatment/survivorship struggle at all. I have openly tried to communicate with some of my family members and get no response. I acknowledge that I need some sort of support, but the hospital setting groups are not my style. The cancer society meetings tend to be mostly elderly people who want to air their laundry list of "issues" and I find that these types of meetings are not constructive for me. I have tried several venues, but really struggle with finding any sort of group for younger survivors. Journaling and just writing this blog really is therapeutic! Perhaps I can connect with someone this way. I want to be as positive, proactive, and as well versed on health and medicine issues that I can

    - Karen

  • January 5, 2011 11:50 a.m.

    ALMA - WHAT an attitude.....wonderful and such an inspiration to many....YES, everyday is a blessing, to be able to get up and enjoy each and everyday, no matter what it brings...I wish you well and here are some gentle (()) hugs for you! Happy New Year for us and many on this site....sharing our stories allows each and everyone of us to "be heard" to inspire and jubulate others....as I've been told, I'm a human anti-depressant....look to the positive and keep your faith! :-)

    - Stephanie

  • December 29, 2010 8:17 p.m.

    Hello Cancer Sisters And Brothers,,,I've been dealing with Multiple Myeloma for 14 yr.s. And I have to say that EVERYDAY is a Blessing for me. I was one of the youngest to have this type of Cancer. I was 33 at the time.This type of Cancer affects the elderly the most.I was Healthy,Young, full of Life. With three children a husband and my whole life ahead of me. Then one day I'm in the hospital for back pain.They did a day of testing. the next day they gave me and my family the news.!!!! You have CANCER! Its Multiple Myeloma. They also told me that I also had Pneumonia & Kidney failure.Talk about life Changing! But, I had my family to think about. I had to Fight this. I was not gonna lay there and just let it take over MY LIFE, MY BODY.Don't get me wrong..it was hard.I was scared,to say the least.I thought I was gonna Die. But,I did what the Dr.s asked. I felt like a ghinnie pig. Test after test, then they said a B.M.T would help.So I was given a high dose of Chemo daily while i was admitted in the hospital Then had a stem Cell transplant, two weeks later. In Nov.of 96 Since, I'm not saying its been easy. But I'm here. I'm ALIVE!!! and that's all worth the aches and pains for me.I need a complete hip replacement,I also walk around with 7 broken vertebraes. They recently found a tumor in my neck, treated it with radiation & gave me intravenous chemo,for 8 months.and now I'm in remission. Yes my Life has changed,But I have control of THE CANCER It DOES N"T Have ME!

    - Alma

  • December 15, 2010 7:19 a.m.

    James - lay it on me??? Give me some specifics, do you have family friends, etc to talk with, do things with? What type of cancer? What outside interest do you have? Hobbies? Let's chat, you won't be depressed conversing with me on here!!! I'm here, will listen and can support you.... :-)

    - Stephanie

  • December 11, 2010 2:28 p.m.

    Hi 23 month cancer free and depression is getting the most of me I feel worthless and cant seem to find ho to get past it my life is filing apart so many things have changed in my life and am confused about them not shear to deal with it

    - james

  • December 9, 2010 7:38 a.m.

    Victoria - I am speechless, saddened and presently crying reading your post...my heart goes out to you and your family and friends. She has blessed us all here with her words and upbeat fighting spirit...I felt personally connected to her, perhaps because I have a 12 year old son, and just absolutely love children and people...I loved her karizma, outlook and enjoyed writing her to hear about her "view" of things at such a young age...((((((hugs))))))) to you. If there is anything I can offer please let me know. May the good lord comfort her and may her spirit continue to be spread through each and everyone she has touched so deeply.

    - Stephanie

  • December 7, 2010 12:03 p.m.

    Sorry it has taken me so long, but Tori would of liked you to know that she is in a much better place, reunited with her dad at last. She passed away November 12th with all her family and close friends with her. We are all devastated but know she is happier now. Thanks for all your kind words and prayers. XoXo

    - Victoria

  • December 1, 2010 2:19 p.m.

    Albert - Thank you for your words of wisdom....yes, so true and moving forward will just make the past quietly fade away, in it's own time, with everything some wounds take a little longer to heal but we're all HUMAN! Hope your Thanksgiving was enjoyable and to all on this blog we are thankful for many things. Tori and Victoria - How are you darlings doing? In my thoughts and prayers and well wishes...xoxo

    - Stephanie

  • November 20, 2010 1:43 a.m.

    I CAN ONLY TELL YOU WHAT I DID.Don't look back just go forward and injoy your life.If my cancer came back,well i'll keep doing the same thing.don't look back.BE STRONG FOR YOURSELF AND YOUR FAMILY AND YOUR FRIENDS.THEY WILL LOOK UP TO YOU WITH RESPECT.

    - Albert

  • November 16, 2010 7:42 a.m.

    Dorothy - Hmm, you sound very much like me, and Tomax can can some nasty side effects...what your describing I can tell you I had same, then went on Femara, which also had bad side effects. Since my tumor was large (7x10cm) until chemo shrunk it, then I had bilat mastcmy, expanders and rads (2006), I was only on Tomax for 3 months then it was changed, what's very curious is that everytime I had a surgery I stopped the Femara for months and I found that side effects went away and when I had my periodic bloodwork everything always looked great and I felt wonderful and looked good too, beefed up my sun exposure and Vit D and it just gave me more and more energy...how long have you been on Tomax? How's your blood pressure too? Family history? I know that when "my body" found it's own niche, I just took off, running my own Landscaping business and being busy and active as well as physically fit helped me thru it all, however, that changed in 2008 and just one complication after another set me back some, but I'm back to getting this 47 year young body where it should be, I won't settle for less, positive is all good and you keep that focus...where are you located, shame we can't buddy up and be support system for each other thru this race, huh? If posting gets you thru it then so be it...more power to us!!! Weight gain is side effect, there may not be too much you can do there, but you need to speak with your Onc Dr. to see what options you have! Hugs to you!!! :-)

    - Stephanie

  • November 16, 2010 7:30 a.m.

    Erin - Your welcome, what you posted is all very normal and it's just a transition you'll go thru, sorting, thinking, changing, all normal....depression can hit very hard and it could take one small event or thing to set it off, be kind to yourself, don't beat yourself up and yes, believe me, I got tired of a lot as well. Even 4 years out now with all the surgeries, complications, abuse, divorce, loosing my business (my passion) and my sons, loosing friends, family and sowly isolating myslef from quite a bit, loosing a job, fighting with the state for help, denied disability, unemployment and so on...god, I could write a book, somehow I still am managing to "hold on" to reality and push thru it all, probaly because that light at the end of the tunnel is small, but I can see it and am reaching for it daily....no one tells you "all" you'll actually experience and they can't, it's as individual as your finger print and dna....you'd have to walk in my shoes exactly to really know and understand but it is therapy to be positive and take things on a daily basis, if it's not inyour control to change, then it has to run off your back like water off a duck's kazooo...smile more, laugh outloud, watch a funny movie and cry when you want to, take time for yourself and the things you enjoy regardless of "who" or "what" goes on around you...I try and do see all things comming together, and everything happens for a reason! Hope this helped and I enj

    - Stephanie

  • November 15, 2010 1:25 p.m.

    I was diagnosed with breast cancer in October 2008, followed by chemo, a bilateral mastectomy (one prophylactically), and radiation with treatment being completed in June 2009. I was definitely a very active, type A personality, and loved my work working in the healthcare field, and owning my own business. I live on my own, and have a really hard time trying to keep up with home and running a business. I have taken on a few patients but having difficulty physically. I am 49 years old, on Tomaxifen, and having new side effects. I am particularly concerned about swelling and weakness in the legs. I have been tested, no clot, no cancer, doing the bike as walking and stairs are difficult, as well put on 25 pounds which does not help my joints. Is there anyone out there that is having pain/swelling in joints, weakness in the legs after a year and a bit after treatment? I am generally a very positive person, but how long does the "not feeling well" feeling continue? Appreciate the input. Dorothy

    - Dorothy

  • November 15, 2010 8:18 a.m.

    stephanie, thanks for the kick in the ass! lol i am starting to crawl out of the depression. It was just so many things happening at once with no family support? I just got tired..tired of every thing. Now I am battling a lung infection I think, tests should be back today. I only have less than 20% of my lungs still working so a cold or infection is kind of a big deal. But I have to finish sorting clothes today Giving TONS to salvation Army Looking thru pics also getting albums and scrapbooks done for the kids and that I enjoy!!! why it takes so long!!! Everyone have a great day I am stuck at home because they haven't plowed my road yet LOL

    - erin

  • November 15, 2010 7:06 a.m.

    Victoria and Tori - Good morning sunshine!!! How are you feeling today? Victoria, how are Tori's spirits? Tori, keep smiling sweetie....gentle hugs and thoughts are always with you and your family....xoxoxo

    - Stephanie

  • November 12, 2010 7:16 a.m.

    OMG - How wonderful...IL too, that's so cool...I won't ask questions as to your daughter, just offering many thoughts and strength to your both, having a quilt made would be awesome and how funny I'm working on one of those for my 16 year son, NFL and sports stuff and another for my 12 year son, hopefully finished by xmas for them....keep your self busy and enjoy as much as you can and you'll find inspiration in all and these blogs help no matter how long or short... Have a peaceful enjoyable weekend to you and all!

    - Diane

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