Craniosynostosis

The Mayo Clinic Diet Book, learn more

Free

E-newsletter

Subscribe to Housecall

Our weekly general interest
e-newsletter keeps you up to date on a wide variety of health topics.

Sign up now

Coping and support

By Mayo Clinic staff

Having an infant with craniosynostosis can be anxiety-producing and emotionally draining. Talking to people who are dealing with similar challenges can provide you with information and emotional support.

Ask your doctor about support groups in your community. If a group isn't for you, perhaps your doctor can put you in touch with a family who has dealt with craniosynostosis. Or you may be able to find group or individual support online.

If your child has significant facial or cranial abnormalities, discuss these abnormalities with your child's teacher before school begins.

References
  1. Craniosynostosis information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/craniosynostosis/craniosynostosis.htm. Accessed Aug. 9, 2011.
  2. Stal S, et al. Overview of craniosynostosis. http://www.uptodate.com/home/index.html. Accessed Aug. 9, 2011.
  3. Craniosynostosis and craniofacial disorders. American Association of Neurological Surgeons. http://www.aans.org/en/Patient%20Information/Conditions%20and%20Treatments/Craniosynostosis%20and%20Craniofacial%20Disorders.aspx. Accessed Aug. 9, 2011.
  4. Back to Sleep public education campaign. National Institute of Child Health & Human Development. http://www.nichd.nih.gov/sids. Accessed Aug 9, 2011.
  5. Stal S, et al. Craniosynostosis syndromes. http://www.uptodate.com/home/index.html. Accessed Aug. 9, 2011.
DS00959 Sept. 29, 2011

© 1998-2013 Mayo Foundation for Medical Education and Research (MFMER). All rights reserved. A single copy of these materials may be reprinted for noncommercial personal use only. "Mayo," "Mayo Clinic," "MayoClinic.com," "EmbodyHealth," "Enhance your life," and the triple-shield Mayo Clinic logo are trademarks of Mayo Foundation for Medical Education and Research.

  • Reprints
  • Print
  • Share on:

  • Email

Advertisement


Text Size: smaller largerlarger