Coping and supportBy Mayo Clinic staff
Having an infant with craniosynostosis can be anxiety-producing and emotionally draining. Talking to people who are dealing with similar challenges can provide you with information and emotional support.
Ask your doctor about support groups in your community. If a group isn't for you, perhaps your doctor can put you in touch with a family who has dealt with craniosynostosis. Or you may be able to find group or individual support online.
If your child has significant facial or cranial abnormalities, discuss these abnormalities with your child's teacher before school begins.
- Craniosynostosis information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/craniosynostosis/craniosynostosis.htm. Accessed Aug. 9, 2011.
- Stal S, et al. Overview of craniosynostosis. http://www.uptodate.com/home/index.html. Accessed Aug. 9, 2011.
- Craniosynostosis and craniofacial disorders. American Association of Neurological Surgeons. http://www.aans.org/en/Patient%20Information/Conditions%20and%20Treatments/Craniosynostosis%20and%20Craniofacial%20Disorders.aspx. Accessed Aug. 9, 2011.
- Back to Sleep public education campaign. National Institute of Child Health & Human Development. http://www.nichd.nih.gov/sids. Accessed Aug 9, 2011.
- Stal S, et al. Craniosynostosis syndromes. http://www.uptodate.com/home/index.html. Accessed Aug. 9, 2011.