Limited scleroderma (CREST syndrome)

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Preparing for your appointment

By Mayo Clinic staff

Because limited scleroderma can affect so many different parts of your body, you may need to be seen by doctors in a variety of specialties, including:

  • Rheumatology, the treatment of arthritis and other musculoskeletal disorders
  • Dermatology, the treatment of skin disorders
  • Pulmonology, the treatment of lung disorders

What you can do
You may want to write a list that includes:

  • Detailed descriptions of your symptoms
  • Information about medical problems you've had
  • Information about the medical problems of your parents or siblings
  • All the medications and dietary supplements you take
  • Questions you want to ask the doctor

What to expect from your doctor
During the physical exam, your doctor will look for changes in the texture, color and appearance of your skin. He or she may also ask:

  • Are you having problems with heartburn?
  • Any trouble swallowing?
  • Are you experiencing extra fatigue or achiness?
  • Do your fingers change color when they get cold?
References
  1. Handout on health: Scleroderma. National Institute of Arthritis and Musculoskeletal Diseases. http://www.niams.nih.gov/Health_Info/Scleroderma/default.asp. Accessed March 18, 2009.
  2. Steen VD. The many faces of scleroderma. Rheumatic Disease Clinics of North America. 2008;34:1.
  3. Wigley FM. Scleroderma. In: Goldman L, et al. Cecil Medicine. 23rd ed. Philadelphia, Pa.: Saunders Elsevier; 2007. http://www.mdconsult.com/das/book/body/126871837-5/818551240/1492/1032.html#4-u1.0-B978-1-4160-2805-5..50293-7--cesec9_13002. Accessed March 19, 2009.
  4. Raynaud's phenomenon. National Institute of Arthritis and Musculoskeletal and Skin Diseases. http://www.niams.nih.gov/Health_Info/Raynauds_Phenomenon/default.asp. Accessed March 18, 2009.
  5. Interstitial lung disease and pulmonary fibrosis. American Lung Association. http://www.lungusa.org/site/apps/nlnet/content3.aspx?c=dvLUK9O0E&b=2060161&content_id={4350F20F-98E4-403B-A33B-68B20A3C2FBA}&notoc=1. Accessed March 19, 2009.
  6. Pulmonary hypertension. National Heart Lung and Blood Institute. http://www.nhlbi.nih.gov/health/dci/Diseases/pah/pah_what.html. Accessed March 19, 2009.
  7. Denton CP. Overview of the treatment and prognosis of systemic sclerosis (scleroderma) in adults. http://www.uptodate.com/home/index.html. Accessed March 20, 2009.

DS00580

June 2, 2009

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