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Coping and support
By Mayo Clinic staffIf you or someone you love has cystic fibrosis, you may experience strong emotions such as anger or fear. These issues are especially common in teens. Talking openly about how you feel can help. It may also help to talk with others who are dealing with the same issues.
That might mean joining a support group for parents of children with cystic fibrosis. Older children with the disorder may want to join a cystic fibrosis group to meet and talk with others who have the disease. Psychologists are often an important part of the care team as the child approaches the teen years.
- What is cystic fibrosis? National Heart Lung and Blood Institute. http://www.nhlbi.nih.gov/health/dci/Diseases/cf/cf_all.html. Accessed Dec. 9, 2009.
- Welsh MJ. Cystic fibrosis. In: Goldman L, et al. Cecil Medicine. 23rd ed. Philadelphia, Pa.: Saunders Elsevier; 2007. http://www.mdconsult.com/das/book/body/175336803-3/0/1492/366.html#4-u1.0-B978-1-4160-2805-5..50094-X_3680. Accessed Dec. 11, 2009.
- Boat TF, et al. Cystic fibrosis. In: Kliegman RM, et al. Nelson Textbook of Pediatrics. 18th ed. Philadelphia, Pa.: Saunders Elsevier; 2007. http://www.mdconsult.com/das/book/body/175336803-3/0/1608/945.html#4-u1.0-B978-1-4160-2450-7..50402-3--cesec14_7740. Accessed Dec. 11, 2009.
- Katkin JP. Cystic fibrosis: Clinical manifestations and diagnosis. http://www.uptodate.com/hme/index.html. Accessed Dec. 11, 2009.
- Cystic fibrosis. Genetics Home Reference. National Institutes of Health. http://ghr.nlm.nih.gov/condition=cysticfibrosis. Accessed Dec. 11, 2009.
- What is bronchiectasis? National Heart, Lung and Blood Institute. http://www.nhlbi.nih.gov/health/dci/Diseases/brn/brn_whatis.html. Accessed Jan. 4, 2010.
- Simon RH. Cystic fibrosis: Overview of the treatment of lung disease. http://www.uptodate.com/home/index.html. Accessed Dec. 14, 2009.
- An introduction to postural drainage and percussion. Cystic Fibrosis Foundation. http://www.cff.org/UploadedFiles/treatments/Therapies/Respiratory/PosturalDrainage/An%20Introduction%20to%20Postural%20Drainage%20and%20Percussion%201-2006.pdf. Accessed Dec. 14, 2009.
- Airway clearance techniques. Cystic Fibrosis Foundation. http://www.cff.org/treatments/Therapies/Respiratory/AirwayClearance/. Accessed Dec. 14, 2009.
- Baker RD, et al. Cystic fibrosis: Nutritional issues. http://www.uptodate.com/home/index.html. Accessed Dec. 14, 2009.
- Wenstrom KD. Cystic fibrosis: Prenatal genetic screening. http://www.uptodate.com/home/index.html. Accessed Dec. 14, 2009.
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