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By Mayo Clinic staffYou can take steps to improve quality of life as the disease progresses.
Carry a reminder calendar
Record not just upcoming events, but things that happen and activities you need to complete on a daily basis. And check off those activities when done. If you can make this process a habit before your memory problems worsen, you'll be more likely to retain this skill as the disease progresses. If you can't remember if you took your pills or who called that morning, you can check your calendar.
Maintain a calm and stable home environment
A calm and stable home environment reduces behavior problems. New situations, noise, large groups of people, being rushed or pressed to remember, or being asked to do complicated tasks can cause anxiety. When you have Alzheimer's disease or dementia, becoming upset reduces the ability to think clearly even more.
Establish a nighttime ritual
Dementia behaviors may be worse at night when you're more tired, strained by the demands of the day, or perhaps confused because of the decrease in daylight. Try to establish going-to-bed rituals that are calming and away from the noise of television, meal cleanup and active family members. Leave night lights on to prevent disorientation. Limiting caffeine during the day, avoiding daytime napping and exercising during the day may help prevent nighttime restlessness.
Create a plan
Develop a comprehensive plan that identifies goals for care as well as the various support agencies, care centers, primary and specialty doctors, legal advisors and other family members that can help achieve these goals.
This process may or may not be something that a person with dementia can participate in. Some things for you and your caregiver to consider are:
- What is the long-term prognosis and what is the plan for treatment?
- Is independent living possible? If not, will care be provided in a family home or a nursing home?
- Does support need to be provided for things such as meal preparation, daily hygiene and taking medications?
- If independent or semi-independent living isn't possible, who will be the primary caregiver?
- What about driving? Should it continue?
- Are there safety issues, such as installing bed and bathroom safety rails and removing or securing knives and other dangerous substances or objects, that need to be addressed?
- What assistance is available through adult care centers, in-home nursing care or other agencies?
- What about legal issues such as a living will and power of attorney for health care issues? What are your wishes?
Keep in mind that the disease will evolve over time, and care needs to be adjusted as symptoms change and progress. People with dementia should be encouraged to continue their normal activities as long as they're safe and the activities don't cause frustration or confusion. Mental, social and physical activities help maintain a person's health and well-being.
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