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Coping and support

By Mayo Clinic staff

Living with dystonia can be difficult and frustrating. Your body may not always move the way you would like it to move, and you may be uncomfortable in social situations.

You and your family may find it helpful to talk to a therapist. Also, you and your family may benefit from joining a support group. Support groups can provide you with information regarding your condition. Ask your doctor for suggestions of local support groups, or check the Internet for information about support groups in your area.

References
  1. Dystonias fact sheet. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/dystonias/detail_dystonias.htm. Accessed Feb. 14, 2012.
  2. Comella C. Classification and evaluation of dystonia. http://www.uptodate.com/index. Accessed Feb. 13, 2012.
  3. Phukan J, et al. Primary dystonia and dystonia-plus syndromes: Clinical characteristics, diagnosis, and pathogenesis. The Lancet Neurology. 2011;10:1074.
  4. Dystonias. The Merck Manuals: The Merck Manual for Healthcare Professionals. http://www.merck.com/mmpe/print/sec16/ch221/ch221c.html. Accessed Feb. 13, 2012.
  5. Neurological diagnostic tests and procedures. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/misc/diagnostic_tests.htm. Accessed Feb. 14, 2012.
  6. Comella C. Treatment of dystonia. http://www.uptodate.com/index. Accessed Feb. 13, 2012.
  7. Ferri FF. Ferri's Clinical Advisor 2012: 5 Books in 1. Philadelphia, Pa.: Mosby Elsevier; 2012. http://www.mdconsult.com/books/page.do?eid=4-u1.0-B978-0-323-05611-3..00013-6--sc0135&isbn=978-0-323-05611-3&uniqId=317541266-3#4-u1.0-B978-0-323-05611-3..00013-6--sc0135. Accessed Feb. 14, 2012.
  8. Ozelius LJ, et al. Milestones in dystonia. Movement Disorders. 2011;26:1106.
  9. Complementary therapy. Dystonia Medical Research Foundation. http://www.dystonia-foundation.org/pages/complementary_therapy/156.php. Accessed Feb. 14, 2012.
  10. Terms related to complementary and alternative medicine. National Center for Complementary and Alternative Medicine. http://nccam.nih.gov/health/providers/camterms.htm. Accessed Feb. 15, 2012.
  11. Yoga for health: An introduction. National Center for Complementary and Alternative Medicine. http://nccam.nih.gov/health/yoga/introduction.htm. Accessed Feb. 15, 2012.
DS00684 May 12, 2012

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