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Preparing for your appointment
By Mayo Clinic staff
What you can do
When you go in to see your doctor, take along a detailed family history, especially if family members have died of blood vessel or organ ruptures. Because EDS is an inherited condition, an accurate family history is important for diagnosis.
What to expect from your doctor
Your doctor will ask you detailed questions about your symptoms and family history. He or she will also complete a thorough physical examination. In many cases, a diagnosis of EDS can be made based only on your symptoms and family history.
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- Volkov N, et al. Ehlers-Danlos syndrome: Insights on obstetric aspects. Obstetrical & Gynecological Survey. 2006;62:51.
- Voermans NC, et al. Neuromuscular involvement in various types of Ehlers-Danlos syndrome. Annals of Neurology. 2009;65:687.
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