Fibrous dysplasia

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Coping and support

By Mayo Clinic staff

Living with a condition such as fibrous dysplasia or having a child with the condition can be stressful. It may be helpful for you to:

  • Learn all you can about the condition. Knowing what you might expect in terms of signs and symptoms and what you can do about them may help ease your mind.
  • Join a support group. Talking to people with similar concerns — either online or face to face — can help you find solutions to challenges and help you feel that you're not alone. Talk to your doctor to find groups in your area.
Treatments and drugs
References
  1. Fibrous dysplasia. American Academy of Orthopaedic Surgeons. http://orthoinfo.aaos.org/topic.cfm?topic=A00083. Accessed June 3, 2011.
  2. Tis JE. Overview of benign bone tumors in children and adolescents. http://www.uptodate.com/home/index.html. Accessed June 3, 2011.
  3. Whyte MP. Osteonecrosis, osteosclerosis/hyperostosis, and other disorders of bone. In: Goldman L, et al. Cecil Medicine. 23rd ed. Philadelphia, Pa.: Saunders Elsevier; 2008. http://www.mdconsult.com/das/book/body/191371208-2/0/1492/0.html#. Accessed June 3, 2011.
  4. Rosenberg AE. Bones, joints and soft-tissue tumors. In: Kumar V, et al. Robbins and Cotran Pathologic Basis of Disease. 8th ed. Philadelphia, Pa.: Saunders Elsevier; 2007. http://www.mdconsult.com/books/page.do?eid=4-u1.0-B978-1-4377-0792-2..50031-6--cesec46&isbn=978-1-4377-0792-2&sid=1166563817&uniqId=255806599-7#4-u1.0-B978-1-4377-0792-2..50031-6--cesec64. Accessed June 3, 2011.
  5. Chapurlat RD, et al. Treatment of fibrous dysplasia of bone with intravenous pamidronate: long-term effectiveness and evaluation of predictors of response to treatment. Bone. 2004;35:235.
  6. Joglekar SB (expert opinion). Mayo Clinic, Rochester, Minn. June 18, 2011.
  7. Sim FH (expert opinion). Mayo Clinic, Rochester, Minn. June 18, 2011.
DS00991 July 7, 2011

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