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By Mayo Clinic staffLiving with a condition such as fibrous dysplasia or having a child with the condition can be stressful. It may be helpful for you to:
- Learn all you can about the condition. Knowing what you might expect in terms of signs and symptoms and what you can do about them may help ease your mind.
- Join a support group. Talking to people with similar concerns — either online or face to face — can help you find solutions to challenges and help you feel that you're not alone. Talk to your doctor to find groups in your area.
References
- Fibrous dysplasia. American Academy of Orthopaedic Surgeons. http://orthoinfo.aaos.org/topic.cfm?topic=A00083. Accessed May 11, 2009.
- DiCaprio MR, et al. Fibrous dysplasia. Pathophysiology, evaluation, and treatment. The Journal of Bone & Joint Surgery. 2005;87:1848.
- Leet AI, et al. Current approach to fibrous dysplasia of bone and McCune-Albright syndrome. Journal of Children's Orthopaedics. 2007;1:3.
- Polyostotic fibrous dysplasia. Craniofacial & Skeletal Diseases Branch, Division of Intramural Research, National Institute of Dental and Craniofacial Research. http://csdb.nidr.nih.gov/frame_clinical_bkg.htm. Accessed May 11, 2009.
- Glorieux FH, et al. Medical therapy of children with fibrous dysplasia. Journal of Bone and Mineral Research. 2006;21(suppl):P110.
- Chapurlat RD, et al. Fibrous dysplasia of bone and McCune-Albright syndrome. Best Practice & Research Clinical Rheumatology. 2008;22:55.