Fibrous dysplasia

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Coping and support

By Mayo Clinic staff

Living with a condition such as fibrous dysplasia or having a child with the condition can be stressful. It may be helpful for you to:

  • Learn all you can about the condition. Knowing what you might expect in terms of signs and symptoms and what you can do about them may help ease your mind.
  • Join a support group. Talking to people with similar concerns — either online or face to face — can help you find solutions to challenges and help you feel that you're not alone. Talk to your doctor to find groups in your area.
References
  1. Fibrous dysplasia. American Academy of Orthopaedic Surgeons. http://orthoinfo.aaos.org/topic.cfm?topic=A00083. Accessed May 11, 2009.
  2. DiCaprio MR, et al. Fibrous dysplasia. Pathophysiology, evaluation, and treatment. The Journal of Bone & Joint Surgery. 2005;87:1848.
  3. Leet AI, et al. Current approach to fibrous dysplasia of bone and McCune-Albright syndrome. Journal of Children's Orthopaedics. 2007;1:3.
  4. Polyostotic fibrous dysplasia. Craniofacial & Skeletal Diseases Branch, Division of Intramural Research, National Institute of Dental and Craniofacial Research. http://csdb.nidr.nih.gov/frame_clinical_bkg.htm. Accessed May 11, 2009.
  5. Glorieux FH, et al. Medical therapy of children with fibrous dysplasia. Journal of Bone and Mineral Research. 2006;21(suppl):P110.
  6. Chapurlat RD, et al. Fibrous dysplasia of bone and McCune-Albright syndrome. Best Practice & Research Clinical Rheumatology. 2008;22:55.

DS00991

July 11, 2009

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