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Hospice care: Comforting the terminally ill

Hospice care might be an option if you or a loved one has a terminal illness. Understand how hospice care works and how to select a program.

By Mayo Clinic staff

If you or a loved one has a terminal illness and you've exhausted all treatment options, you might consider hospice care. Find out how hospice care works and how it can provide comfort and support to you or your loved one, as well as your family and friends.

What is hospice care?

Hospice care is for people who are nearing the end of life. Hospice care services are provided by a team of health care professionals who maximize comfort for a terminally ill person by reducing pain and addressing physical, psychological, social and spiritual needs. To help families, hospice care also provides counseling, respite care and practical support.

Unlike other medical care, the focus of hospice care isn't to cure the underlying disease. The goal of hospice care is to support the highest quality of life possible for whatever time remains.

Who can benefit from hospice care?

Hospice care is for a terminally ill person who's expected to have six months or less to live. This doesn't mean that hospice care will be provided only for six months, however. Hospice care can be provided as long as the person's doctor and hospice care team certify that the condition remains life-limiting.

Hospice care isn't just for people who have cancer. Many people who receive hospice care have cancer, while others have heart disease, dementia, kidney failure or chronic obstructive pulmonary disease.

Hospice care has been shown to make people who have incurable illnesses feel better and live longer. Enrolling in hospice care early might help you or your loved one develop a strong relationship with the hospice staff, who can help with preparation for end-of-life needs.

Where is hospice care provided?

Most hospice care is provided at home — with a family member typically serving as the primary caregiver. However, hospice care is also available at hospitals, nursing homes, assisted living facilities and dedicated hospice facilities.

Keep in mind that no matter where hospice care is provided, sometimes it's necessary to be admitted to a hospital. For instance, if a symptom can't be adequately managed by the hospice care team in a home setting, a hospital stay might be needed.

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References
  1. About hospice and palliative care. National Hospice and Palliative Care Organization. http://www.nhpco.org/i4a/pages/index.cfm?pageid=4648&openpage=4648. Accessed Nov. 27, 2012.
  2. Hospice care: A consumer's guide to selecting a hospice program. National Hospice and Palliative Care Organization. http://www.caringinfo.org/files/public/brochures/Hospice_Care.pdf. Accessed Nov. 27, 2012.
  3. Hospice care and the Medicare hospice benefit. National Hospice and Palliative Care Organization. http://www.caringinfo.org/files/public/brochures/Hospice_and_Medicare.pdf. Accessed Nov. 27, 2012.
  4. Russell KM, et al. 'I'm not that sick!' Overcoming the barriers to hospice discussions. Cleveland Clinic Journal of Medicine. 2006;73:517.
  5. Meier DE, et al. Hospice: Philosophy of care and appropriate utilization. http://www.uptodate.com/index. Accessed Nov. 27, 2012.
  6. NHPCO facts and figures: Hospice care in America. National Hospice and Palliative Care Organization. http://www.nhpco.org/files/public/Statistics_Research/2012_Facts_Figures.pdf. Accessed Nov. 27, 2012.
  7. Hospice frequently asked questions. National Hospice and Palliative Care Organization. http://www.nhpco.org/i4a/pages/index.cfm?pageid=4642&openpage=4642. Accessed Nov. 27, 2012.
  8. Am I eligible for hospice and palliative care? U.S. Department of Veterans Affairs. http://www.va.gov/GERIATRICS/Guide/LongTermCare/Hospice_and_Palliative_Care.asp#. Accessed Nov. 27, 2012.
  9. El-Jawahri A, et al. Does palliative care improve outcomes for patients with incurable illness? A review of the evidence. Journal of Supportive Oncology. 2011;9:87.
  10. Moynihan TJ (expert opinion). Mayo Clinic, Rochester, Minn. Nov. 27, 2012.
  11. Bartlett AL (expert opinion). Mayo Clinic, Rochester, Minn. Dec. 11, 2012.
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