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Coping and support
By Mayo Clinic staffWith the help of rehabilitation therapies and educational interventions, many people with hydrocephalus live with few limitations.
There are many resources available to provide emotional and medical support as you parent a child with hydrocephalus. Children with developmental problems due to hydrocephalus may be eligible for government-sponsored health care and other support services. Check with your state or county social services agency.
Hospitals and voluntary organizations serving people with disabilities are good resources for emotional and practical support, as are doctors and nurses. Ask these resources to help you connect with other families who are coping with hydrocephalus.
Adults living with hydrocephalus may find valuable information and support from organizations dedicated to hydrocephalus education and support, such as the Hydrocephalus Association.
- Hydrocephalus fact sheet. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm?css=print. Accessed July 17, 2009.
- Fishman MA. Hydrocephalus. http://www.uptodate.com/home/index.html. Accessed July 17, 2009.
- Golden JA, et al. Developmental structural disorders. In: Goetz GD. Textbook of Clinical Neurology. 3rd ed. Philadelphia, Pa.: W.B. Saunders; 2007. http://www.mdconsult.com/das/book/body/150609977-3/864809399/1488/253.html#4-u1.0-B978-1-4160-3618-0..10028-1_1756. Accessed July 17, 2009.
- About hydrocephalus: A book for families. Hydrocephalus Association. http://www.hydroassoc.org/docs/AboutHydrocephalus-A_Book_for_Families_Dec08.pdf. Accessed July 17, 2009.
- Meningococcal: Who needs to be vaccinated? http://www.cdc.gov/vaccines/vpd-vac/mening/who-vaccinate.htm. Centers for Disease Control & Prevention. Accessed July 17, 2009.
