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Coping and support
By Mayo Clinic staffWith the help of rehabilitative therapies and educational interventions, many people with hydrocephalus live with few limitations.
There are many resources available to provide emotional and medical support as you parent a child with hydrocephalus. Children with developmental problems due to hydrocephalus may be eligible for government-sponsored health care and other support services. Check with your state or county social services agency.
Hospitals and voluntary organizations serving people with disabilities are good resources for emotional and practical support, as are doctors and nurses. Ask these resources to help you connect with other families who are coping with hydrocephalus.
Adults living with hydrocephalus may find valuable information and support from organizations dedicated to hydrocephalus education and support, such as the Hydrocephalus Association.
- Hydrocephalus. American Association of Neurological Surgeons. http://www.aans.org/Patient%20Information/Conditions%20and%20Treatments/Hydrocephalus.aspx. Accessed June 11, 2011.
- Hydrocephalus fact sheet. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/hydrocephalus/detail_hydrocephalus.htm. Accessed June 10, 2011.
- Fishman MA. Hydrocephalus. http://www.uptodate.com/home/index.html. Accessed May 10, 2011.
- Diagnosis of hydrocephalus. Hydrocephalus Association. https://www.hydroassoc.org/hydrocephalus-education-and-support/learning-about-hydrcephalus/diagnosis-of-hydrocephalus. Accessed June 11, 2011.
- Graff-Radford NR. Normal pressure hydrocephalus. http://www.uptodate.com/home/index.html. Accessed June 10, 2011.
- Life-threatening complications of hydrocephalus. Hydrocephalus Association. https://www.hydroassoc.org/hydrocephalus-education-and-support/learning-about-hydrcephalus/life-threatening-complications-of-hydrocephalus. Accessed June 11, 2011.
- Hamilton MG. Treatment of hydrocephalus in adults. Seminars in Pediatric Neurology. 2009;16:34.
- Meningococcal vaccine: Who and when to vaccinate. Centers for Disease Control and Prevention. http://www.cdc.gov/vaccines/vpd-vac/mening/who-vaccinate.htm. Accessed June 28, 2011.
- Wetjen NM (expert opinion). Mayo Clinic, Rochester, Minn. July 6, 2011.
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