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Coping and support
By Mayo Clinic staffInterstitial cystitis can have a profound adverse effect on your quality of life. Support from family and friends is important, but because the condition is a urinary problem, you may find the topic difficult to discuss.
Start with the simplest self-care strategies, such as wearing loose clothing and limiting or eliminating soda, caffeine and citrus. Wait a reasonable amount of time to see if these measures help, and keep trying new ones, as long as they don't disrupt your life even more than interstitial cystitis already has. Perhaps most important, find a supportive doctor who is concerned about your quality of life as well as your condition and will work with you to help alleviate your urinary frequency, urgency and bladder pain.
Also, you might benefit from joining a support group. Such a group can provide both sympathetic listening and useful information. For a list of interstitial cystitis support groups throughout the United States or for information on how to start a group in your area, contact the Interstitial Cystitis Association on the Web or call 800-HELP-ICA (800-435-7422).
- Interstitial cystitis/painful bladder syndrome. National Institute of Diabetes and Digestive and Kidney Diseases. http://kidney.niddk.nih.gov/kudiseases/pubs/interstitialcystitis/. Accessed Nov. 23, 2010.
- Fitzgerald MP. Clinical features and diagnosis of painful bladder syndrome/interstitial cystitis. http://www.uptodate.com/home/index.html. Accessed Nov. 23, 2010.
- Interstitial cystitis. The Merck Manuals: The Merck Manual for Healthcare Professionals. http://www.merckmanuals.com/professional/print/sec17/ch228/ch228e.html. Accessed Nov. 23, 2010.
- Hanno PM, et al. Bladder pain syndrome. Medical Clinics of North America. 2011;95:55.
- Hanno PM. Painful bladder syndrome/interstitial cystitis and related disorders. In: Wein AJ, et al. Campbell-Walsh Urology. 9th ed. Philadelphia, Pa.: Saunders Elsevier; 2007. http://www.mdconsult.com/das/book/body/113536197-2/0/1445/13.html?tocnode=54300277&fromURL=13.html#4-u1.0-B978-0-7216-0798-6..50012-1_840. Accessed Nov. 23, 2010.
- Engelhardt PF, et al. Long-term results of intravesical hyaluronan therapy in bladder pain syndrome/interstitial cystitis. International Urogynecology Journal. In Press. Accessed Nov. 23, 2010.
- Homma Y, et al. Clinical guidelines for interstitial cystitis and hypersensitive bladder syndrome. International Journal of Urology. 2009;16:597.
- Fitzgerald MP. Treatment of painful bladder syndrome/interstitial cystitis. http://www.uptodate.com/home/index.html. Accessed Nov. 23, 2010.
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