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Coping and support
By Mayo Clinic staffApart from infertility, Klinefelter syndrome may cause minor symptoms for boys or men that are hardly noticeable.
Boys with Klinefelter syndrome
There are a number of steps you can take that can make a big difference in helping your son cope with Klinefelter syndrome and to promote healthy physical and social development through adolescence into young adulthood:
- Monitor your son's development carefully and seek help for any problems you notice, such as trouble with speech or language.
- Encourage participation in sports and physical activities that will help build muscle strength and motor skills.
- Encourage your son to be independent. Be supportive but not overly protective, and provide a home environment with lots of positive feedback and encouragement.
- Cooperate closely with your son's school. Teachers, school counselors and administrators who understand your son's needs can make a big difference.
- Learn what support is available. Boys with Klinefelter syndrome qualify for special programs, including Supplemental Security Income (SSI) benefits.
- Connect with other parents. Klinefelter syndrome is a common condition, and you — or your son — aren't alone. A number of Internet resources and support groups may help answer your questions and alleviate concerns.
Men with Klinefelter syndrome
Men with Klinefelter syndrome can benefit from several self-care measures:
- Work closely with your doctor. Making sure you have the right treatment can help you maintain your current physical and mental health and prevent problems later in life, such as thinning bones (osteoporosis).
- Don't ignore the stress of infertility. You and your partner may both want to talk to a doctor or other health professional about your options.
- Talk with others who have the condition. A number of resources provide information about Klinefelter syndrome and perspectives of other men and their partners who cope with the disorder.
- Klinefelter syndrome. National Institutes of Health. http://www.nichd.nih.gov/health/topics/klinefelter_syndrome.cfm. Accessed Feb. 19, 2008.
- Klinefelter syndrome. Madison's Foundation. http://www.madisonsfoundation.org/index.php/component/option,com_mpower/diseaseID,195/. Accessed Feb. 19, 2008.
- Lanfranko F, et al. Klinefelter's syndrome. The Lancet. 2004;364(9430):273-283
- Bojesen A, et al. Klinefelter syndrome in clinical practice. Nature Clinical Practice Urology. 2007;4(4):192-193.
- Klinefelter syndrome. U.S. National Library of Medicine. http://ghr.nlm.nih.gov/condition=klinefeltersyndrome. Accessed Feb. 26, 2008.
- Klinefelter (XXY) syndrome. California Department of Developmental Services. http://www.ddhealthinfo.org/coursebuilder/?id=25. Accessed Feb. 19, 2008.
