Coping and supportBy Mayo Clinic staff
If you have lupus, you're likely to have a range of painful feelings about your condition, from fear to extreme frustration. The challenges of living with lupus increase your risk of depression and related mental health problems, such as anxiety, stress and low self-esteem. To help you cope with lupus, try to:
- Learn all you can about lupus. Write down all the questions you have about lupus and ask them at your next appointment. Ask your doctor or nurse for reputable sources of further information. The more you know about lupus, the more confident you'll feel in your treatment choices.
- Gather support among your friends and family. Talk about lupus with your friends and family and explain ways they can help out when you're having flares. Lupus can be frustrating for your loved ones because they usually can't see it and you may not appear sick. They can't tell if you're having a good day or a bad day unless you tell them. Be open about what you're feeling so that your friends and family know what to expect.
- Take time for yourself. Cope with stress in your life by taking time for yourself. Use that time to read, meditate, listen to music or write in a journal. Find activities that calm and renew you.
- Connect with others who have lupus. Talk to other people who have lupus. You can connect with other people who have lupus through support groups in your community or through online message boards. Other people with lupus can offer unique support because they're facing many of the same obstacles and frustrations that you're facing.
- Handout on Health: Systemic lupus erythematosus. National Institute of Arthritis and Musculoskeletal and Skin Diseases. http://www.niams.nih.gov/Health_Info/Lupus/. Accessed Aug. 22, 2011.
- Crow MK. Systemic lupus erythematosus. In: Goldman L, et al. Cecil Medicine. 24th ed. Philadelphia, Pa.: Saunders Elsevier; 2011. http://www.mdconsult.com/das/book/body/191371208-2/0/1492/0.html#. Accessed Aug. 22, 2011.
- Systemic lupus erythematosus. In: Ferri FF. Ferri's Clinical Advisor 2011: Instant Diagnosis and Treatment. Philadelphia, Pa.: Mosby Elsevier; 2011. http://www.mdconsult.com/books/about.do?eid=4-u1.0-B978-0-323-05610-6..C2009-0-38600-6--TOP&isbn=978-0-323-05610-6&about=true&uniqId=230100505-53. Accessed Aug. 22, 2011.
- Schur PH, et al. Diagnosis and differential diagnosis of systemic lupus erythematosus in adults. http://www.uptodate.com/home/index.html. Accessed Aug. 23, 2011.
- Hahn BH. Systemic lupus erythematosus. In: Longo DL, et al. Harrison's Online. 18th ed. New York, N.Y.: The McGraw-Hill Companies; 2012. http://www.accessmedicine.com/resourceTOC.aspx?resourceID=4. Accessed Aug. 23, 2011.
- Schur PH, et al. Overview of the therapy and prognosis of systemic lupus erythematosus in adults. http://www.uptodate.com/home/index.html. Accessed Aug. 23, 2011.
- Moder KG (expert opinion). Mayo Clinic, Rochester, Minn. Aug. 25, 2011.
- Rohren CH (expert opinion). Mayo Clinic, Rochester, Minn. Sept. 1, 2011.
- Falk RJ, et al. Indications for renal biopsy in patients with lupus nephritis. http://www.uptodate.com/home/index.html. Accessed Sept. 1, 2011.
- Whittier WL, et al. Indications for and complications of renal biopsy. http://www.uptodate.com/home/index.html. Accessed Sept. 1, 2011.
- Haija AJ, et al. The role and effect of complementary and alternative medicine in systemic lupus erythematosus. Rheumatic Disease Clinics of North America. 2011;37:47.
- Systemic lupus erythematosus. Natural Medicines Comprehensive Database. http://www.naturaldatabase.com. Accessed Aug. 23, 2011.