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Preparing for your appointment
By Mayo Clinic staff
Whom to see
You're likely to start by seeing your family doctor or a general practitioner. If your doctor suspects you may have a myelodysplastic syndrome, you may be referred to a doctor who specializes in blood disorders (hematologist).
How to prepare
Because appointments can be brief, and because there's often a lot of ground to cover, be prepared for your appointment. To prepare, try to:
- Be aware of any pre-appointment restrictions. At the time you make the appointment, be sure to ask if there's anything you need to do in advance, such as restrict your diet.
- Write down any symptoms you're experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment.
- Write down key personal information, including any major stresses or recent life changes.
- Make a list of all medications, as well as any vitamins or supplements, that you're taking.
- Take a family member or friend along, if possible. Sometimes it can be difficult to absorb all the information provided during an appointment. Someone who accompanies you may remember something that you missed or forgot.
- Write down questions to ask your doctor.
Questions to ask
Your time with your doctor is limited, so preparing a list of questions will help you make the most of your time together. List your questions from most important to least important in case time runs out. For myelodysplastic syndromes, some basic questions to ask your doctor include:
- Do I have a myelodysplastic syndrome?
- What type of myelodysplastic syndrome do I have?
- Will I need more tests?
- What is my prognosis?
- What is my risk of leukemia?
- Will I need treatment for my myelodysplastic syndrome?
- What are my treatment options?
- Can any treatments cure my myelodysplastic syndrome?
- What are the potential side effects of each treatment?
- Is there one treatment you feel is best for me?
- I have these other health conditions. How can I best manage them together?
- Are there any restrictions that I need to follow?
- Should I see a specialist? What will that cost, and will my insurance cover it?
- Are there any brochures or other printed material that I can take with me? What Web sites do you recommend?
- What will determine whether I should plan for a follow-up visit?
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something.
- Nguyen PL. The myelodysplastic syndromes. Hematology/Oncology Clinics of North America. 2009;23:675.
- Myelodysplastic syndromes treatment (PDQ) patient version. National Cancer Institute. http://www.cancer.gov/cancertopics/pdq/treatment/myelodysplastic/patient/allpages/print. Accessed Sept. 2, 2009.
- Vardiman JW, et al. The 2008 revision of the World Health Organization (WHO) classification of myeloid neoplasms and acute leukemia: Rationale and important changes. Blood. 2009;114:937.
- Foran JM, et al. Myelodysplastic syndromes. In: Abeloff MD, et al. Abeloff's Clinical Oncology. 4th ed. Philadelphia, Pa.: Churchill Livingstone; 2008:2235.
- Stone RM. How I treat patients with myelodysplastic syndromes. Blood. 2009;113:6296.
- DeAngelo DJ, et al. Myelodysplastic syndromes: Biology and treatment. In: Hoffman R, et al. Hematology: Basic Principles and Practice. 5th ed. Philadelphia, Pa.: Churchill Livingstone; 2009. http://www.mdconsult.com/book/player/book.do?method=display&type=aboutPage&decorator=header&eid=4-u1.0-B978-0-443-06715-0..X5001-8--TOP&isbn=978-0-443-06715-0&uniq=158945000. Accessed Aug. 26, 2009.
