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Coping and support
By Mayo Clinic staffA number of support groups are available for people with Noonan syndrome and their families. Talk to your doctor about finding a support group in your area. There are also good resources on the Internet that can direct you to local support groups and sources of information about this syndrome. One such group is the Noonan Syndrome Support Group. You can reach them online or by calling 888-686-2224.
References
- Romano AA, et al. Noonan syndrome: Clinical features, diagnosis, and management guidelines. Pediatrics. 2010;126:745.
- Van der Burgt I. Noonan Syndrome. Orphanet Journal of Rare Diseases. 2007;2:1.
- Allanson JE. Noonan syndrome. GeneReviews. http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=noonan. Accessed Nov. 16, 2010.
- Allanson JE. Noonan syndrome. American Journal of Medical Genetics. 2007;145C: 274.
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