Preparing for your appointment
By Mayo Clinic staffMost people with Paget's disease of the bone don't have any symptoms and are diagnosed when an X-ray or blood test taken for another reason reveals signs of Paget's disease. In some cases, you may be referred immediately to a doctor who specializes in metabolic and hormonal disorders (endocrinologist) or in bone and muscle disorders (rheumatologist).
What you can do
Before your appointment, you may want to write a list that answers the following questions:
- What symptoms, if any, do you have? When did they start?
- Have any of your relatives had Paget's disease of bone?
- What medications or supplements are you taking?
What to expect from your doctor
During the physical exam, your doctor will carefully examine any areas of your body that are causing you pain. He or she may also order X-rays and blood tests that can help confirm the diagnosis of Paget's disease of bone.
- Facts a new patient needs to know about Paget's disease of bone. National Institutes of Health Osteoporosis and Related Bone Diseases: National Resource Center. http://www.niams.nih.gov/health_info/bone/pagets/default.asp. Accessed May 26, 2010.
- Roodman GD. Paget's disease of bone. In: Goldman L, et al. Cecil Medicine. 23rd ed. Philadelphia, Pa.: Saunders Elsevier; 2007. http://www.mdconsult.com/das/book/body/203002646-3/1004517503/1492/963.html#4-u1.0-B978-1-4160-2805-5..50273-1_12206. Accessed May 26, 2010.
- Paget's disease of bone. American Academy of Orthopaedic Surgeons. http://orthoinfo.aaos.org/topic.cfm?topic=A00076. Accessed May 26, 2010.
- Mercier LR. Paget's disease of the bone. In: Ferri FF. Ferri's Clinical Advisor 2010. Philadelphia, Pa.: Mosby Elsevier; 2009. http://www.mdconsult.com/das/book/body/203002646-3/1004517503/2088/470.html#4-u1.0-B978-0-323-05609-0..00025-3--sc0010_9669. Accessed May 26, 2010.
- Kelepouris N. Clinical manifestations and diagnosis of Paget disease of bone. http://www.uptodate.com/home/index.html. Accessed May 27, 2010.
- Lane NE. Paget's disease of bone. In: Firestein GS, et al. Kelley's Textbook of Rheumatology. 8th ed. Philadelphia, Pa.: WB Saunders Co.; 2008. http://www.mdconsult.com/das/book/body/203002646-3/0/1807/698.html?tocnode=55733939&fromURL=698.html#4-u1.0-B978-1-4160-3285-4..10092-0--s0210_3402. Accessed May 26, 2010.
- Seton M. Treatment of Paget disease of bone. http://www.uptodate.com/home/index.html. Accessed May 27, 2010.

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