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Coping and support

By Mayo Clinic staff

Some cases of pemphigus can be debilitating and potentially embarrassing, especially before treatment starts to work. To help you cope with the disease and the effects of the drugs used for treatment, you may find it helpful and encouraging to talk to others with the condition. You can find in-person or virtual support groups. Ask your dermatologist if there are any groups in your area or contact the International Pemphigus & Pemphigoid Foundation (IPPF) at 916-922-1298 (this is not a toll-free call) or through their website. The IPPF also offers peer to peer support for people who are newly diagnosed.

References
  1. Goldstein BG. Pemphigus. http://www.uptodate.com/home/index.html. Accessed April 6, 2010.
  2. Berger TG. Dermatologic disorders. In: McPhee SJ, et al. Current Medical Diagnosis and Treatment. 49th ed. New York, N.Y.: McGraw-Hill Medical; 2009. http://www.accessmedicine.com/content.aspx?aID=747. Accessed April 5, 2010.
  3. Stanley JR. Pemphigus. In: Wolff K, et al. Fitzpatrick's Dermatology in General Medicine. 7th ed. New York, N.Y.: McGraw-Hill Medical; 2008. http://www.accessmedicine.com/content.aspx?aID=2970595. Accessed April 5, 2010.
  4. Pemphigus vulgaris. The Merck Manuals: The Merck Manual for Healthcare Professionals. http://www.merck.com/mmpe/print/sec10/ch112/ch112f.html. Accessed April 5, 2009.
  5. Pemphigus. National Institute of Arthritis and Musculoskeletal and Skin Diseases. http://www.niams.nih.gov/Health_Info/Pemphigus/default.asp. Accessed April 5, 2010.
  6. Baroni A. Vesicular and bullous disorders: Pemphigus. Dermatologic Clinics. 2007;25:597.
  7. Gibson LE (expert opinion). Mayo Clinic, Rochester. April 9, 2010.
DS00749 May 15, 2010

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