Coping and support
By Mayo Clinic staffSome cases of pemphigus can be debilitating and potentially embarrassing, especially before treatment starts to work. To help you cope with the disease and the effects of the drugs used for treatment, you may find it helpful and encouraging to talk to others with the condition. You can find in-person or virtual support groups. Ask your dermatologist if there are any groups in your area or contact the International Pemphigus & Pemphigoid Foundation (IPPF) at 916-922-1298 (this is not a toll-free call) or through their website. The IPPF also offers peer to peer support for people who are newly diagnosed.
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