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Lifestyle and home remedies

By Mayo Clinic staff

If you have porphyria, be sure to:

  • Know what could trigger symptoms. Talk to your doctor about the type of porphyria you have and become familiar with possible symptom triggers and ways to avoid them.
  • Inform your health care providers. Tell all your health care providers that you have porphyria. This is particularly important if you're having surgery because, in some cases, surgery can trigger porphyria symptoms.
  • Wear a medical information bracelet or necklace. Have information about your condition inscribed on a medical information bracelet or necklace, and always wear it.
Prevention Treatments and drugs
References
  1. Puy H, et al. Porphyrias. The Lancet. 2010;375:924.
  2. Learning about porphyria. National Human Genome Research Institute. http://www.genome.gov/pfv.cfm?pageID=19016728. Accessed March 22, 2011.
  3. Porphyria. National Digestive Diseases Information Clearinghome (NDDIC). http://digestive.niddk.nih.gov/ddiseases/pubs/porphyria/Porphyria.pdf. Accessed March 22, 2011.
  4. Anderson KF. Porphyrias: An overview. http://www.uptodate.com/home/index.html. Accessed March 22, 2011.
  5. Porphyrias. The Merck Manuals: The Merck Manual for Healthcare Professionals. http://www.merckmanuals.com/professional/print/sec12/ch155/ch155a.html. Accessed March 22, 2011.
  6. Desnick RJ, et al. The porphyrias. In: Fauci AS, et al. Harrison's Online. 17th ed. New York, N.Y.: The McGraw-Hill Companies; 2008. http://www.accessmedicine.com/content.aspx?aID=2883658. Accessed March 22, 2011.
  7. Singal AK, et al. Porphyria cutanea tarda and hepatoerythropoietic porphyria. http://www.uptodate.com/home/index.html. Accessed March 22, 2011.
  8. Wolanskyj AP (expert opinion). Mayo Clinic, Rochester, Minn. April 5, 2011.
DS00955 May 7, 2011

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