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Lifestyle and home remedies
By Mayo Clinic staffIf you have porphyria, be sure to:
- Know what could trigger symptoms. Talk to your doctor about the type of porphyria you have and become familiar with possible symptom triggers and ways to avoid them.
- Inform your health care providers. Tell all your health care providers that you have porphyria. This is particularly important if you're having surgery because, in some cases, surgery can spark porphyria symptoms.
- Wear a medical information bracelet or necklace. Have information about your condition inscribed on a medical information bracelet or necklace, and wear it at all times.
References
- Porphyria. National Digestive Diseases Information Clearinghome (NDDIC). http://digestive.niddk.nih.gov/ddiseases/pubs/porphyria/. Accessed March 24, 2009.
- Porphyria. Genetics Home Reference. Accessed March 24, 2009.
- Sassa S, et al. Understanding the porphyrias. http://www.uptodate.com/home/index.html. Accessed March 24, 2009.
- Learning about porphyria. National Human Genome Research Institute. http://www.genome.gov/pfv.cfm?pageID=19016728. Accessed March 24, 2009.
- About porphyria. American Porphyria Foundation. http://www.porphyriafoundation.com/. Accessed March 24, 2009.
- Anstey AV, et al. Liver diseases in erythropoietic protoporphyria: Insights and implications for management. Gut. 2007;56:1009.
- Sassa S, et al. Porphyria cutanea tarda, hepatoerythropoietic porphyria, and toxic porphyria. http://www.uptodate.com/home/index.html. Accessed April 2, 2009.
