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Coping and support
By Mayo Clinic staffLosing the ability to communicate is distressing and incredibly frustrating. Friends and family members can make communication easier by:
- Paying close attention to the affected person
- Giving feedback about the need for clarification
- Providing more time for communication
- Confirming information
- Keeping statements relatively brief
- Supplementing speech with gestures
Family members eventually may need to consider long-term care options for the person with primary progressive aphasia. Family members may also need to plan the person's finances and help make legal decisions to prepare for more-serious stages of the condition.
Support groups may be available for you and the person with primary progressive aphasia or related conditions. Ask your social worker or other members of your treatment team about community resources or support groups.
References
- Ropper AH, et al. Adams & Victor's Principles of Neurology. 9th ed. New York, N.Y.: The McGraw-Hill Companies; 2009. http://www.accessmedicine.com/resourceTOC.aspx?resourceID=54. Accessed Oct. 12, 2012.
- Gorno-Tempini ML, et al. Classification of primary progressive aphasia and its variants. Neurology. 2011;76:1006.
- Harciarek M, et al. Primary progressive aphasias and their contribution to the contemporary knowledge about the brain-language relationship. Neuropsychology Review. 2011;21:271.
- NINDS frontotemporal dementia information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/picks/picks.htm. Accessed Oct. 12, 2012.
- Rogalski E, et al. Increased frequency of learning disability in patients with primary progressive aphasia and their first-degree relatives. Archives of Neurology. 2008;65:244.
- Approach to the patient with aphasia. http://www.uptodate.com/index. Accessed Oct. 12, 2012.
- Neurological diagnostic tests and procedures. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/misc/diagnostic_tests.htm. Accessed Oct. 24, 2012.
- Aphasia. National Institute on Deafness and Other Communication Disorders. http://www.nidcd.nih.gov/health/voice/pages/aphasia.aspx. Accessed Oct. 29, 2012.
- Communicating with people who have aphasia. The National Aphasia Association. http://www.aphasia.org/Aphasia%20Facts/communicating_with_people_who_have_aphasia.html. Accessed Oct. 29, 2012.
- Caring for a person with a frontotemporal disorder. National Institute on Aging. http://www.nia.nih.gov/alzheimers/publication/frontotemporal-disorders-information-patients-families-and-caregivers/caring. Accessed Oct. 31, 2012.
- Treatment and management. National Institute on Aging. http://www.nia.nih.gov/alzheimers/publication/frontotemporal-disorders-information-patients-families-and-caregivers-0. Accessed Oct. 31, 2012.
- Boeve BF (expert opinion). Mayo Clinic, Rochester, Minn. Nov. 20, 2012.
- Duffy JR (expert opinion). Mayo Clinic, Rochester, Minn. Nov. 26, 2012.
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