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Preparing for your appointment
By Mayo Clinic staffReye's syndrome is often diagnosed in an emergency situation because of serious signs and symptoms, such as seizures or loss of consciousness. In some cases, early signs and symptoms prompt a doctor's appointment. You'll likely be referred to a doctor who specializes in conditions of the brain and nervous system (neurologist).
Because appointments can be brief and there's often a lot of ground to cover, it can help to be well prepared. Here are some tips to help you get ready for your appointment.
What you can do
- Be aware of any pre-appointment restrictions. At the time you make the appointment, ask if there's anything you need to do in advance.
- Write down any symptoms your child is experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment.
- Make a list of all medications, including vitamins, dietary supplements and over-the-counter drugs, that your child has taken, especially any containing aspirin. Even better, take the original bottles and a written list of the dosages and directions.
- Take along a family member or friend. It can be difficult to absorb all the information provided to you during an appointment. The person who accompanies you may remember something that you forgot or missed.
- Write down questions to ask your doctor. Don't be afraid to ask questions or to speak up when you don't understand something your doctor says.
List your questions from most important to least important in case your time with your doctor runs out. For Reye's syndrome some basic questions to ask your doctor include:
- What are other possible causes for my child's symptoms?
- What tests are needed to confirm the diagnosis?
- What are the treatment options and the pros and cons for each?
- What results can I expect?
- What kind of follow-up should I expect?
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something.
What to expect from your doctor
The neurologist is likely to ask about your child's symptoms and history of viral illnesses. The doctor will also conduct a medical exam and schedule tests to gather information about your child's condition and to rule out other diseases, such as meningitis or encephalitis. Your doctor will talk to you throughout the process and tell you what tests are being performed and why.
- Gascon GG, et al. Aminoacidopathies and organic acidopathies, mitochondrial enzyme defects, and other metabolic errors. In: Goetz CG. Textbook of Clinical Neurology. 3rd ed. Philadelphia, Pa.: Elsevier Saunders; 2007. http://www.mdconsult.com/das/book/body/142707459-3/0/1488/274.html?tocnode=53802221&fromURL=274.html#4-u1.0-B978-1-4160-3618-0..10031-1_1989. Accessed June 10, 2009.
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- NINDS Reye's syndrome information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/reyes_syndrome/reyes_syndrome.htm. Accessed June 10, 2009.
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- Internal analgesic, antipyretic and antirheumatic drug products for over-the-counter human use: Tentative final monograph. Federal Register.1998;53:46204.
- Mahoney KR (expert opinion). U.S. Food and Drug Administration, Rockville, Md. Feb. 4, 2009.
- Recommended immunization schedules for persons aged 0-18 years - United States, 2009. Centers for Disease Control and Prevention. http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5751a5.htm?s_cid=mm5751a5_e. Accessed June 10, 2009.
- Reye's syndrome. National Reye's Syndrome Foundation. http://www.reyessyndrome.org/pdfs/Awareness_Lists_English_full.pdf. Accessed June 16, 2009.
- Kawasaki disease. American Heart Association. http://www.americanheart.org/presenter.jhtml?identifier=4634. Accessed June 17, 2009.
- Gosalakkal JA, et al. Reye syndrome and Reye-like syndrome. Pediatric Neurology, 2008;39:198.
- Renaud DL (expert opinion). Mayo Clinic, Rochester, Minn. July 6, 2009.
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