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By Mayo Clinic staffTreatment for Stickler syndrome focuses on addressing the signs and symptoms of the disorder. There's no cure for Stickler syndrome.
- Surgery. Babies born with a hole in the roof in their mouths (cleft palate) undergo surgery to repair the defect, usually nine months to a year after birth. During this procedure, tissue from the roof of the mouth may be stretched to cover the cleft palate. This surgery helps relieve problems feeding or breathing.
- Corrective lenses. Corrective lenses are important for treating the severe nearsightedness associated with Stickler syndrome. Some people notice better corrected vision with contact lenses than with glasses.
- Hearing aids. If your child has problems hearing, you may find that your child's quality of life is improved by wearing a hearing aid.
- Anti-inflammatory medications. Medications such as ibuprofen (Advil, Motrin, others), naproxen (Aleve, Naprosyn, others) and aspirin relieve joint swelling, stiffness and pain. Taking these medications before or after physical activity may help your child move more comfortably. However, do not give aspirin to children younger than age 14 because of the risk of Reye's syndrome.
In addition to treating any signs and symptoms, your child will likely continue seeing doctors regularly for eye exams and hearing assessments to monitor whether his or her vision and hearing change over time.
- Stickler syndrome. Genetics Home Reference. http://www.ghr.nlm.nih.gov/condition=sticklersyndrome. Accessed Sept. 4, 2008.
- Stickler GB [expert opinion]. Mayo Clinic, Rochester, Minn. March 28, 2008.
- About Stickler syndrome. Stickler Syndrome Support Group. www.stickler.org.uk/info.htm. Accessed Sept. 4, 2008.
- Francomano C, et al. Stickler syndrome. In: Cassidy SB, et al. Management of Genetic Syndromes. 2nd ed. Hoboken, N.J.: Wiley-Liss; 2005;539-546.