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Coping and support
By Mayo Clinic staffCoping with thalassemia can be challenging. But, you don't have to do it alone. If you have questions or would like guidance, talk with a member of your health care team. You may also benefit from joining a support group. Such a group can provide both sympathetic listening and useful information. To find out about support groups in your area that deal with thalassemia, ask your doctor or contact the Cooley's Anemia Foundation at 800-522-7222.
- What are thalassemias? National Heart Lung and Blood Institute. http://www.nhlbi.nih.gov/health/dci/Diseases/Thalassemia/Thalassemia_All.html. Accessed Nov. 19, 2008.
- Cunningham MJ. Update on thalassemia: Clinical care and complications. Pediatric Clinics of North America. 2008;55:447.
- Benz EJ. Clinical manifestations of the thalassemias. http://www.uptodate.com/home/index.html. Accessed Nov. 10, 2008.
- Schrier SL. Pathophysiology of beta thalassemia. http://www.uptodate.com/home/index.html. Accessed Nov. 10, 2008.
- Embury SH. Prenatal testing for the hemoglobinopathies and thalassemias. http://www.uptodate.com/home/index.html. Accessed Nov. 10, 2008.
- Benz EJ. Treatment of beta thalassemia. http://www.uptodate.com/home/index.html. Accessed Nov. 10, 2008.
