Triple X syndrome

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Coping and support

By Mayo Clinic staff

A number of groups can provide help and support for people with triple X syndrome and their families, such as Knowledge Support & Action, which offers information and advice on coping with the syndrome, as well as ways to meet and talk with others in similar situations. The phone number is 888-999-9428. In addition, your daughter's doctor may be able to recommend a local support group.

If learning disabilities appear, the National Center for Learning Disabilities is a good resource as well. It can be reached at 888-575-7373 or through its website.

References
  1. Otter M, et al. Triple X syndrome: A review of the literature. European Journal of Human Genetics. 2010;18:265.
  2. Triple X syndrome. U.S. National Library of Medicine's Genetics Home Reference. http://ghr.nlm.nih.gov/condition/triple-x-syndrome. Accessed June 14, 2010.
  3. Tartaglia NR, et al. A review of trisomy X (47,XXX). Orphanet Journal of Rare Diseases. 2010;5:8.
  4. Lalatta F, et al. Triple X syndrome: Characteristics of 42 Italian girls and parental emotional response to prenatal diagnosis. European Journal of Pediatrics. In press. Accessed June 14, 2010.
  5. Zabel CA (expert opinion). Mayo Clinic, Rochester, Minn. July 6, 2010.
DS01090 Aug. 17, 2010

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