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Coping and support
By Mayo Clinic staffA number of groups can provide help and support for people with triple X syndrome and their families. They include Knowledge Support & Action, which offers information and advice on coping with the syndrome, as well as ways to meet and talk with others in similar situations. The phone number is 888-999-9428. In addition, your daughter's doctor may be able to recommend a local support group.
If learning disabilities appear, the National Center for Learning Disabilities is a good resource as well. It can be reached at 888-575-7373 or through its website.
References
- Triple X syndrome. U.S. National Library of Medicine's Genetics Home Reference. http://ghr.nlm.nih.gov/condition/triple-x-syndrome. Accessed Sept. 9, 2012.
- 47 XXX syndrome. Genetics and Rare Diseases Information Center. http://rarediseases.info.nih.gov/GARD/Condition/5672/47_XXX_syndrome.aspx. Accessed Sept. 9, 2012.
- Afshun A. Triple X syndrome. Journal of the Pakistan Medical Association. 2012;62:392.
- Otter M, et al. Triple X syndrome: A review of the literature. European Journal of Human Genetics. 2010;18:265.
- Chromosome abnormalities. National Human Genome Research Institute. http://www.genome.gov/11508982#6. Accessed Sept. 10, 2012.
- Chromosomal abnormalities. March of Dimes. http://www.marchofdimes.com/baby/birthdefects_chromosomal.html. Accessed Sept. 11, 2012.
- Tartaglia NR, et al. A review of trisomy X (47,XXX). Orphanet Journal of Rare Diseases. 2010;5:8.
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